What is Ehlers-Danlos-Syndrome

Ehlers-Danlos syndrome is a group of rare genetic disorders caused by a defect in collagen synthesis. Depending on the individual mutation, the severity of the disease can vary fro...

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Monday November 23, 2009

Call For Help Stories

  • agitated.

    Wednesday, May 28, 2008 | A Call For Help story

    grr tonight i cant sleep hayls has gotten to the age where she is crying to see if we respond to it... so alot. and she is all of a sudden so hungery its hard to tell what she needs... and often just fusses when i feed her. she definitly sences my frustration.
    i felt old emotions from before i got help creeping back in my mind. its scary to think that if i was a little worse off id be doing those...

    1 Recommendation

    3 Comments

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  • shakey ground

    Monday, June 9, 2008 | A Call For Help story

    I write in my journal to help my loved ones maybe understand maybe a glimpse of who i (fear i) am and who i want to be. one friend told me she reads my journal but is often at a loss for words. my reply is 'something is always better than nothing.' as i am not doing this for attention or grand standing I hope to open up awarness and break down stigma but its so hard when there is no diala...

    1 Recommendation

    3 Comments

  • I need help

    Saturday, June 28, 2008 | A Call For Help story

    Well, I have a wonderful husband and this I know. He's always there for me. He hardly ever complains and I love him to death. We have a great relationship except something that is a major factor is lacking. He's not romantic, and I'm a hopeless romantic. He's a great friend an even better father, and aa awesome provider but what I'm longing for is someone to sweep me off of my...

    1 Recommendation

  • I need some input my DS friends!

    Sunday, September 14, 2008 | A Call For Help story

    I woke up this morning with horrible stiffness, a migrain, all my joints hurt and basically I was in pain ALL FLIPPING day.  I tried to do my stretched and everything that my Physical Therapist and Occapational Therapist are working with me on, but I am still miserable.  I dont know what to do.  I am ready to jump off the Skyway Bridge.  I dont want to live the rest of my life...

    1 Recommendation

    1 Comment

  • Today

    Tuesday, September 30, 2008 | A Call For Help story

    Hello all i am still sore from what ever i did to my leg/foot/ankle.
    I went to hospital alst night again to get something for the pain you see i decided to walk like i had no problems big mistake that was.
    i got tylenol 2 tablets which work well but tiring a bit. i was checked again for dvt and again found nothing happening and i have tried to rationalize it to the fact that it has been a week and ...

    1 Recommendation

    1 Comment


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