What is Ehlers-Danlos-Syndrome

Ehlers-Danlos syndrome is a group of rare genetic disorders caused by a defect in collagen synthesis. Depending on the individual mutation, the severity of the disease can vary fro...

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Saturday November 28, 2009

Anxious Stories

  • Journal Entry for September 14, 2008

    Sunday, September 14, 2008 | An Anxious story

     My oldest is sick again and i took her to the hospital where she was given a prescription for zantac for the pain in her belly but she does not want to take them because she does not want to become addicted even though i take the same thing and only when i need them can't tell her anything at al she knows everything is her idea and so she will suffer or take tylenol which is worse than ...

    1 Recommendation

    5 Comments

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  • anxious

    Friday, June 12, 2009 | An Anxious story

    OMG! OMG! OMG!
    first sorry if this entry is long but i'm worried! 
    i'm scared out of my head! i just found something out about kazza, so she went in to the hospital last night because of her chest, and she spent all that night and all day today there plus she only just managed to get home tonight but on strict rule that she must not under any circumstances do any physical type of ...

    1 Recommendation

  • Journal Entry for June 29, 2009

    Monday, June 29, 2009 | An Anxious story

    thats it. no more inside of whats going on with kaz now. i was relying on her boyfriend to know whats going on an now she's gone and ended it with him as well. asking the same thing as she did with her other friends an i, to leave her alone for 94 days, make no contact, live as if she was never in our life, an i still dont know whats with this 94 days! according to jason (her boyfriend) she&#...

    1 Recommendation

  • i'm scared about kazz, really scared. p.s. long entry :P

    Tuesday, August 4, 2009 | An Anxious story

    YaY i saw Kazz today!! it was by chance though. we had an appointment in the same building. my one orthopedic doctor is in the SAN hospital because he is the best orthopedic doctor for my elbow an has treated me before. i had an appointment with him an kazz had an appointment with her cardiologist which was two rooms down. so we agreed to meet up afterwards an our parents dropped us off at a...

    1 Recommendation

    1 Comment

  • thinking 'out loud'

    Tuesday, November 24, 2009 | An Anxious story

    Can my condition deteriorate this rapidly, this severely?  Up until now, it has been pretty gradual.  The last 18 months it has been progressing more quickly, and in the last month it has limited me in so many ways.  I am unable to do so many things that I could do just a few weeks ago.  I can not clean my home, go grocery shopping, go to work, pick up my child, or w...

    1 Recommendation


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