Ehlers-Danlos Syndrome Forum - DailyStrength Discuss Ehlers-Danlos Syndrome with others who understand what you're going through. http://www.dailystrength.org/c/Ehlers-Danlos-Syndrome/forum Sat, 25 May 2013 06:44:38 +0100 DailyStrength RSS 0.11.3.0.6833 (FeedCreator 1.7.2) http://static.dailystrength.org/templates/images/promo/logo-round-rss.gif DailyStrength.org http://www.dailystrength.org trying to get a diangnoses http://www.dailystrength.org/c/Ehlers-Danlos_Syndrome/forum/16508146-trying-get-diangnoses all of my life ive had problems that doctors look at and just say "i dont know" or "that doesnt make... Trixxy1 Sat, 25 May 2013 04:51:26 +0100 I'm depressed http://www.dailystrength.org/c/Ehlers-Danlos_Syndrome/forum/16499870-im-depressed I'm depressed. I had dissappointments now for a couple of days regarding medical care for the EDS th... xa1nbowxR Fri, 24 May 2013 01:50:09 +0100 genetics tst results http://www.dailystrength.org/c/Ehlers-Danlos_Syndrome/forum/16493354-genetics-tst-results I got the results from the genetics test that was done. It says that I have two x chromosomes, which... xa1nbowxR Thu, 23 May 2013 04:29:14 +0100 New to the board, not the EDS http://www.dailystrength.org/c/Ehlers-Danlos_Syndrome/forum/16486352-new-board-not Hi y'all! I'm new to this board, and just wanted to introduce myself. I have HEDS (EDS III), and m... bellefromhell Wed, 22 May 2013 10:10:38 +0100 Sleeping with Neck Problems http://www.dailystrength.org/c/Ehlers-Danlos_Syndrome/forum/16451920-sleeping-neck-problems I haven't started physical therapy yet, but thought I'd get a head start on one of my questions. If... Kitzunenotsuki Fri, 17 May 2013 11:22:00 +0100 magnesium http://www.dailystrength.org/c/Ehlers-Danlos_Syndrome/forum/16442526-magnesium I read an article at the EDNF group about the importance of magnesium in our diet and what happens w... xa1nbowxR Thu, 16 May 2013 01:28:10 +0100 hello there http://www.dailystrength.org/c/Ehlers-Danlos_Syndrome/forum/16422952-hello-there just wanted to stop in and say hi to all of the EDS suffers, I am new to the diagnoses I have EDS ty... tony2010laurie Mon, 13 May 2013 16:55:46 +0100 Physical Therapy http://www.dailystrength.org/c/Ehlers-Danlos_Syndrome/forum/16385674-physical-therapy I went to the first physical therapy appointment and was amazed that I happened to get a therapist w... xa1nbowxR Wed, 08 May 2013 12:54:48 +0100 Understanding Proprioception http://www.dailystrength.org/c/Ehlers-Danlos_Syndrome/forum/16329264-understanding-proprioception I don't know much about proprioception, just a vague idea of what it is and a link with Ehlers Danlo... GenuineMystery Tue, 30 Apr 2013 19:17:06 +0100 So gross feeling http://www.dailystrength.org/c/Ehlers-Danlos_Syndrome/forum/16310018-so-gross-feeling I'm am pretty much over a bout of bronchitis. Last Saturday though, I was coughing when all of a sud... LiveLoveandTrust Sun, 28 Apr 2013 00:18:15 +0100 "Gene Reviews article http://www.dailystrength.org/c/Ehlers-Danlos_Syndrome/forum/16274176-gene-reviews-article I found an article that is pretty comprehensive about EDS, hypermobility and how to diagnose it, inc... xa1nbowxR Tue, 23 Apr 2013 05:09:43 +0100 Weird EDS stuff... http://www.dailystrength.org/c/Ehlers-Danlos_Syndrome/forum/16250036-weird-eds-stuff I catch the main stuff having to do with EDS-III (or I, my doctor can't seem to make up his mind) bu... LiveLoveandTrust Sat, 20 Apr 2013 00:25:40 +0100 yay for us! http://www.dailystrength.org/c/Ehlers-Danlos_Syndrome/forum/16247322-yay-us I just want to say that I think this is being a great group! Very helpful in a lot of ways. Sharing ... xa1nbowxR Fri, 19 Apr 2013 18:12:17 +0100 How are your teeth? http://www.dailystrength.org/c/Ehlers-Danlos_Syndrome/forum/16228610-how-your-teeth I've read that EDS people sometimes have problems with their teeth because some have a bit of osteop... xa1nbowxR Wed, 17 Apr 2013 12:27:08 +0100 EDS Awareness http://www.dailystrength.org/c/Ehlers-Danlos_Syndrome/forum/16220296-eds-awareness EDS Support Groups are forming at www.edsawareness.com. Examples of our contributions: - We a... edsawareness Tue, 16 Apr 2013 13:58:16 +0100 EDNF, Ehlers-Danlos Nat'l Foundation http://www.dailystrength.org/c/Ehlers-Danlos_Syndrome/forum/16215080-ednf-ehlersdanlos-natl-foundation the EDNF is going to hold a conference in Rhode Island on the first of August this year. I'm going t... xa1nbowxR Mon, 15 Apr 2013 21:44:30 +0100 How is your spine, your back? http://www.dailystrength.org/c/Ehlers-Danlos_Syndrome/forum/16210806-how-your-spine-your The discs can be affected since they are made partly of collagen. If your back and/or spine is b... xa1nbowxR Mon, 15 Apr 2013 12:26:13 +0100 How are your feet? http://www.dailystrength.org/c/Ehlers-Danlos_Syndrome/forum/16197248-how-your-feet I have fallen arches, and weak ankles, and get heel spurs on the front of the heel bone where the ar... xa1nbowxR Sat, 13 Apr 2013 13:22:16 +0100 more frustration http://www.dailystrength.org/c/Ehlers-Danlos_Syndrome/forum/16177474-more-frustration Well, I do see now that one thing most of us have in common is the great frustration of seeing docto... xa1nbowxR Wed, 10 Apr 2013 22:31:44 +0100 EDS type 3 http://www.dailystrength.org/c/Ehlers-Danlos_Syndrome/forum/16166576-eds-type-3 I'm 19years old nearly 20, I'm currently the 4th member of my family with Ehlers danlos, and one tha... hannahlwp Tue, 09 Apr 2013 15:56:19 +0100