What is Ectodermal Dysplasia

Ectodermal dysplasia is not a single disorder, but a group of closely related conditions. More than 150 different syndromes have been identified.

Ectodermal Dysplasias are de...

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I was just wondering if this group still posts. I would enjoy getting acquainted with folks who have a family member with this diagnosis.
Posted on 06/10/08, 11:06 am
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Reminder: This is a support group for Ectodermal Dysplasia. We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

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Email me when others reply to this topic help
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Reply #1 - 09/26/08  11:15am
" I check in here from time to time, but i don't think many folks post. I am a grandmother as well, to Lane, 2 years old, with ED. Would love to chat! "
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Reply #2 - 06/12/09  7:08am
" Hi there. I have ED. I am a new member and will be on here occasionally. "

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