What is Ectodermal Dysplasia
Ectodermal dysplasia is not a single disorder, but a group of closely related conditions. More than 150 different syndromes have been identified.
Ectodermal Dysplasias are de...
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Ectodermal dysplasia is not a single disorder, but a group of closely related conditions. More than 150 different syndromes have been identified.
Ectodermal Dysplasias are de...

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I was just wondering if this group still posts. I would enjoy getting acquainted with folks who have a family member with this diagnosis.
Posted on 06/10/08, 11:06 am |
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I check in here from time to time, but i don't think many folks post. I am a grandmother as well, to Lane, 2 years old, with ED. Would love to chat!
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Hi there. I have ED. I am a new member and will be on here occasionally.
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