What is Down Syndrome

Down syndrome or trisomy 21 is a genetic condition resulting from the presence of all or part of an extra 21st chromosome. Down syndrome is characterized by a combination of major ...

Join Now

Free, anonymous support from people just like you.

We're on Facebook!
Check out our page!
DS Store is Open
DS t-shirts and more
Advertisement
Discussion:
Me !!
Watch this 
View More Posts Ignore
Ok I have had am email from someone to my private email saying that I should not be passing on so much info regarding supplements ect.

First of all I am only passing on info I am not giving advice. I am not qualified to give that kind of advice. My Bsc and Msc are both in psychology bot bio chemistry.

Secondly I have done many years of research to get where I am today in terms of what I give to Sam. Everything I am passing on information about is stuff I give to Sam.

Would you rather I did not post this info ?? I can send to people privately if they still want info??

I am not here to upset anyone and nothing I passon information about is dangerous in any way and there is RESEARCH to back it all up and thats the importnat thing as far as I am concerned.

Sam is doing well on all his stuff and I just wanted to give other kids the chance too , Katie xx
Posted on 11/08/09, 03:11 pm
6 Replies Add Your Reply
Reminder: This is a support group for Down Syndrome. We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

You may also create your own Member Groups where you can moderate the discussion.
Comment:
Email me when others reply to this topic help
View More Posts Ignore
Reply #1 - 11/08/09  5:12pm
" What? Heavens, no. I for one want you to keeping posting anything and everything you can post to us whatever it is in regards to. If the person who emailed you is not happy with it, they don't need to read it, follow it or whatever. If they were not interested in the postings, why would they look them up at all? We all have to search out topics and subjects when we're out here. Nothing has ever been pushed on me. If I want to try something for Marcus I will. If I feel the need is not there right now, obviously I won't. I can't thank you enough Katie for all the info you've given me and I'm sure others out here would say the same. I say keep it coming!!!!! xx Terri xx "
View More Posts Ignore
Reply #2 - 11/08/09  8:42pm
" Katie,

Please continue in sharing your experiences! Isn't that what this group is all about? Sharing what works and what doesnt. I appreciate what you have to say. I think there is alot of value to what you share, and it gives direction for some to do their own research. It's these little shared tidbits that just might make a big difference for some. I don't think anyone would make a decision on their loved ones health based on something someone posted on some site. I beleive it opens up some new ideas to talk to the professionals about.

Keep it coming! "
View More Posts Ignore
Reply #3 - 11/09/09  10:47am
" I wouldnt know what kind of supplements are out there that could possibly help Emma if it werent for you guys.....I see your posts and check them out and if I like them good if I dont so what....I have never felt pressured to try something...and certainly wouldnt use a product just because someone told me too...thats silly......this other person needs somthing else to do.......I need your info just like every new mom does.......alot of parents dont have time to go online and find out everything they could be doing or tryiing......more power to you and your efforts..... "
View More Posts Ignore
Reply #4 - 11/09/09  9:01pm
" Hi Katie,
I think you have a few positive comments here! We all like sharing information and experiences. If someone finds our experiences helpful than we have helped that person. Every idea, treatment or gadget may not be suitable for everyone. Making the information available can give a mom ideas on where to turn. We all have the same motive, to help our children to be the best that they can be.
Keep Smiling...
Bonnie "
View More Posts Ignore
Reply #5 - 11/10/09  1:01pm
" Katie,keep doing what you do, girl. If someone isn't interested in what you have to say, they don't have to read it.

Susan "
View More Posts Ignore
Reply #6 - 11/10/09  6:00pm
" Katie,
I agree with everyone else here, please don't stop researching and sharing all this valuable information with us. I'm sorry that the person who left you that email didn't have the courage to idenify themselves, but if you stop, so many kids could miss out on some wonderful things that can improve their quality of life.
I hope we can look foward to future posts from you!!!!!!
Hugs! Karen "

Add Your Reply
Advertisement

Advertisement
Content on DailyStrength.org is for informational purposes only. We do not provide any medical advice, diagnosis or treatment. More info
Portions of support group and treatment information provided by Wikipedia under the GNU FDL license
Copyright 2006-2009, DailyStrength, Inc. All rights reserved.
Terms of Service | Privacy Policy | Report Abuse | HSW International | HSW China | HSW Brazil