Diabetes Type 1 Support Group

Hi Neenee

Feel free to vent on here, or send me a message if you want to. Diabetes is a really difficult condition and I have had some really rough times with it. It is hard if you don't know anyone else with diabetes.

Can you say some more about how you feel or what difficulties you are having with your diabetes?

Hugs to you NeeNee!
I have never been in a comatose state before, so I'm not sure how you would feel after one! But I do understand you when you say everyone you know doesn’t have diabetes. I live my life with no one understanding how I feel! I just wish someday they could!
How do other people deal with their other half, not understanding! Some days we bicker cause he thinks it should be done this way, but I know the way it should be done! He’s a paramedic so some days he thinks he knows it all! Day after day he deals with diabetics, and taking them to the hospital!
NeeNee Anytime you need to vent please do count on me! I don't have much experience as a diabetic cause I have only been a T1 for a year and 1/2, but I do have a great ear!

I remember when my daughters sugar reading was 22. She was acting like she was moaning in her sleep and I checked her sugar, I called 9-11 and there was a snow storm. She was fighting me to get sugar down her and slurring her speech. I was so scared that night. I dumped honey down her throat untill they got to my house.

Hi Neenee,

It is so scary isn't it.

My husband found me convulsing on the bed late one afternoon with a reading of 0.9. I don't remember anything about it until I came to with five paramedics in the bedroom with me. That scared me out of my wits. Usually after a bad hypo (without any convulsions) I usually come to with only two paramedics but five freaked me out totally. They called in the Mica one to run a drip but luckily I didn't need it. My husband looked like a ghost and my daughter was in her room scared.

For the next two days my readings were low and I couldn't get them above 4.5, so another hypo was imminent. I had the worse neck and head ache due to the convulsions for days after. I felt like all the blood had drained from me leaving me weak and sick to my stomach. The worst feeling of all was the loss of control yet again and scaring my family. I will never forget the look on my husbands face when I came around.

I went to the Endo after this and told him and he said no big deal. NO BIG DEAL are you kidding. This had never happened before and i hope never does.

People who don't have diabetes don't understand as you say. However, this is the best place to ask, vent and just talk about it as there is a wide range of people with all varied experiences of their diabetes here. Just remember you are not alone.

My wife has had Type 1 for 41 years, and I've had Type 2 for 12. My wife has been hospitalized numerous times during our 31 years of marriage. From 1996 to 1999 was her most difficult time, coming close to death 3 different times. We know what it's like to battle the highs and lows of Type 1 diabetes. Don't give up, and know we'd be happy to listen and help as we are able.

I wopuld like to thank all of you that responded to my message. I just had a chance to read them after being down with an ear infection and temperature.

In response to Lizzie:I have a lot of difficulties with trying to explain or show people how I am feeling about things that relate to my diabets. After over 11 years of this, I sometimes just feel defeated and sickly all the time even though I am trying my hardest to be healthy.

It is also hard to explain to someone how I feel about almost dying. It was terrifying and I feel like even though my family, friends and boyfriend have heard me, they still don't get how scary it was for me to wake up and know that I was in an ambulance, sedated, on a breathing tube and not concious for three days of my life.

I try to tell them that I am not looking for sympathy or whining about it or being "whoa is me", just trying to deal with the situation out loud and not keep it buried inside.