What is Diabetes Type 1

Type 1 diabetes (formerly known as "childhood" or "juvenile" diabetes or "insulin dependent" diabetes) is most commonly diagnosed in children and adolescents. The adult incidence o...

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Advice:
Coping with Diabetes
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I am 19 years old. I was diagnosed with adult-onset type 1 diabetes 6 weeks ago. I also found out I have hypothyroidism (which is very treatable with one pill a day for the rest of my life), and this week diagnosed once again with PCOS (Poly-cystic Ovarian Syndrom). I just feel like it's one thing after the other.

Most days, I am dealing with it all pretty well, considering. But there are some times when I feel like giving up. I get angry when I talk to people who don't know what I'm going through. I can't tell you how many people said, "Before long, it will be like second nature to you." That's great, but it's not yet second nature giving myself shots everyday and I'm dealing with NOW, not the future.

Diabetes does not run in my family, and they are all very supportive, but they have no idea what goes on in my life and in my mind on a day-to-day basis. I just feel like I'm having a hard time coping and just wondering if anyone else is having these same or similar feelings. Any suggestions or want to talk about it?

Thank you for taking the time to read this.
Karen
Posted on 01/20/08, 07:01 pm
12 Replies | Most Recent Add Your Advice
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Reply #1 - 01/21/08  5:03pm
" i know my fiance has a pretty big issue with giving himself shots and he has been doing it for 5 years and i know when i was in the hospital for pnumonia i had to take insulin shots because of the meds i was on... its not fun i would not be able to do that on a day to day basis. u r very strong to actually do it. im sorry u have to go through this... im here if u have any questions "
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Reply #2 - 01/21/08  5:29pm
" Just wanted to let you know that I know where you are coming from. I was diagnosed w/ Type 1 diabetes last March (I was 33 at the time). I am also the 1st in family to have it.
I wish I could say those feeling of hopelessness, anger, frustration, etc will get better in time. I can totally relate about getting upset with people who don't understand. When I was 1st diagnosed, people said to me "well, at least it isn't cancer." Hello! Was that supposed to make me feel any better?! It only made me feel worse. At 1st I would try to hide how I felt & put on a big smile when I told people about it, like "it's no big deal". That was ok for a few months, then I became bbitter & got angry with God for "doing this to me."
It hasn't been easy, & some days are harder than others. But I have come to the realization that maybe God has "blessed me" & I can make a difference. I have yet to figure out exactly what he wants me to do. I try to educate people around me about Diabetes whenever they are willing to listen. That seems to help.
I am here for you..if you need a friend please feel free to write back.

Hugs! "
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Reply #3 - 01/21/08  6:01pm
" I know exactly what you mean! I heard the whole, "At least you don't have cancer" so many times. Even one of my friends said it and said she was relieved to find out it was "just diabetes." That just made me mad.

I have questioned God's intent as well. I have struggled with "Why" and "Why me?" I try to stay away from those questions as much as possible. I just have to pray that he has a plan for me.

My aunt said that she believes people go through struggles in their lives because someday they will meet someone, somewhere, who will need their guidance. I hope that is true.

Thank you both for your advice and support. I am also here for both of you. "
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Reply #4 - 01/21/08  6:40pm
" All i can say is insulin PUMP "
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Reply #5 - 01/22/08  12:15am
" Really? Now, how long after I'm diagnosed do I have to wait before getting it? I've thought about it a lot lately, but most people I've talked to say they did shots for 5-15 YEARS before getting the pump. I want it sooner but don't have any idea if I can.

Anyone else like or dislike using the pump? "
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Reply #6 - 04/11/08  8:47pm
" i've been on the pump for about 3 years now. i cannot tell you how over having diabetes i am lol...and my care program is probably less than excellent....but at the same time, the pump gives you SO MUCH more freedom and after your rates are adjusted, there is almost no risk of low blood sugars.
the pump was the only thing that helped me get my sugars in better control....i've had diabetes since i was 7...so yeah i feel ya on the day to day grind.... "
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Reply #7 - 04/13/08  12:09am
" I know exactly how you feel! im 19 turning 20 and i've had diabetes since i was 12. I can't tell you how many times i've had the "well it could be worse..." speech. It's one of those things were you truly can't come close to understanding unless you have the disease...its just as much emotional as physical demanding on you. Like KristinG said you always have the frustrations and anger, I don't think that ever goes away, although some times it hits you less then other times.

I've been on my insulin pump for 8 years. I was on shots for not even a year before I went on it. I think it really depends on what you prefere and if your doctor is willing to set you up on it. I went on it bc i was heavily involved in sports and having to eat a meal at game time wasn't ideal. For sure the positives out weight the negatives when going to the pump but it also can be frustrating when you want to wear something nice and don't want to have something hanging off you...but like i said i would say it brings soo much more freedom and flexibility! eating what you want when you want plus gives you much better control....i know it can give some people sever lows but i've only had one for the 8 years i've been on it!

hope that helps! Here for you if you have any questions or need someone to talk to!!! :) "
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Reply #8 - 04/20/08  2:43pm
" Karen... I hope you don't mind me asking, but what were your specific symptoms upon being diagnosed with PCOS and hypothyroidism? "
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Reply #9 - 04/21/08  12:40pm
" I don't think there's really a "set" amount of time before you can get the pump. But I will tell you that the ins. companies used to want to see a history (usually about 6 weeks) of blood sugars before they would authorize it. And I've heard that your A1C had to be above 7 for them to feel that its "medically nec". When I got pregnantthey put me right on the pump, so I never had to wait. But to be honest with you, I think that all of that has changed and you may not need to wait at all.You should check with your doctor. And may I add that it is sooooo much better than injections. I took shots for 28 years, and the past 2 on the pump have been AWESOME! Good Luck! "
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Reply #10 - 04/21/08  6:08pm
" I was diagnosed with diabetes and hypothyroidism on the same day, so I can't know how to distinguish the symptoms between the two. I know that the main symptom of hypothyroidism is just constant fatigue. My symptoms before PCOS were severe hair loss, I had never had my period without being on birth control (that's the main symptom is irregular or no periods), and some people experience facial hair and excess body hair.

I want to thank you all for your advice and support. Sometimes I don't even know how to get through the days and coming on here and reading your words really helps more than I would have expected. I hate to admit it, but I think I might have depression...I'm considering seeing a therapist or something, if for no other reason than to just vent about this stupid disease to someone who will listen for as long as I want to talk!! Has anyone else experienced this?? "

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