What is Dercums Disease
Adiposis dolorosa, also known as Dorcum's disease, is a rare disease characterized by multiple painful lipomas that arise in adult life. It occurs most often in obese postmenopausa...
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Multitreatment for dercum's
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Hi everyone! since we have a disease with no treatment or cure, I have been trying to log down what works and what doesn't so Ican help others along with your assistance treatments that work for Dercum's so we can give others with this Disease steps in how to manage the disease. I will start I have lipomas but the majority is lipomatosis which is everywhere. The surgeon will not remove the lipomas unless they are large. If tries to remove the lipomatosis I will have nasty scars, and the lipomasand lipomatosis will reappear. so for me surgery is not an option. MY Program consists with : 1. Morphine it works best for me, take extended release 3 x a day for maintence. once a day did not work. dilaudid for BT medication
2. Muscle relaxant 3 x a day . 3. Cymbalta for depression, neuropathic pain 4. lidoderm patch 5. GERD diet 6. acupuncture or water therapy(aquatic) 7. walking (exercise) 8. for me I would like to get intrathecal pain pump my reason is: the morphine works the best, the disease is slowly progressive it will become worse overtime and the dose can be adjusted. you don't need as much morphine with the pump, and it cuts down side effects. Since I have started these treatment except pain pump working on it my pain level has been consistenly at a level 3. even my flairs went from 10 to an 8. I have not had to call pain management and I have to had to go to er for pain control. Fatigue is the biggest problem now. A PAIN LEVEL 3 IT IS WORKING: PLEASE TELL ME TREATMENTS THAT HAVE WORKED FOR YOU SO WE CAN MAKE A LIST TO HELP OTHERS!!1 Posted on 07/01/09, 09:07 pm |
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