What is Dercums-Disease
Adiposis dolorosa, also known as Dorcum's disease, is a rare disease characterized by multiple painful lipomas that arise in adult life. It occurs most often in obese postmenopausa...
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Ask an Expert
Posted in 1) Demerol: I'll never forget a lecture I attended as a resident by a well known toxicologist who said Demerol should be pulled from the ... Read More »
Obtaining family history from parents and siblings who aren't very forthcoming about their medical history can be tricky. A new tool from the ... Read More »
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Hi everyone, my friends and others I have not met....
elch Jul 10, 2009
A journey of pain towards a painless existence.
Friday, July 10, 2009 |
Hi everyone, my friends and others I have not met. I am still trying to figure out this site so if I have not responded to you is because I have not figured out how. I have had a bad week I work in urology clinic very busy practice. This week the secretary and nurse went on vacation. The secretary who replaced her did not want to do her job, and the nurse has OCD and takes along time doing everyt...
1 Recommendation -
I have a rare disease called Dercum's, it has ...
elch Jun 28, 2009
Sunday, June 28, 2009 |
I have a rare disease called Dercum's, it has been a life long journey as I suffered through the years in pain at time severe pain. I have been blessed with doctors who never said your a hypochondiac. even if they might have thought it. It opened the door for others to try and figure out my pain. In the end it was I who was my best advocate. I started researching my own pain. The one thing I ...1 Recommendation
1 Comment -
Waiting to receive muscle biop and hopeful that te...
Neeva Jun 19, 2009
Journal Entry for June 19, 2009
Friday, June 19, 2009 |
Waiting to receive muscle biop and hopeful that test results will reveal and confirm the specific disease that is causing me neuromuscular pain and weakness1 Recommendation1 Comment -
Neeva May 08, 2009
Friday, May 8, 2009
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I awoke to a headache, sense of loss. I am better ...
HelenRS May 06, 2009
Wednesday, May 6, 2009 |
I awoke to a headache, sense of loss. I am better organised, than at any other time in my life. The only problem is that my resources, limit what I can do. I do realise that my health could be much worse, this knowledge does not help with the feelings of frustration1 Recommendation -
I am looking to you other people who are suffering...
blynetteoger Mar 20, 2009
Friday, March 20, 2009
I am looking to you other people who are suffering from this horribly painful desiese. If anyone knows of a Dr in San Fernado Valley in CA that I can go to for a diagnosis please let me know.Also what helps you with pain?I am so tired of Drs asking me if I am on drugs because they dont know what to do for me, I also had a DR ask me if I was bipolar and I said to him Im not yet but I am about to b...1 Recommendation -
Neeva Feb 17, 2009
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One of those days, weeks ,months.....I need pain r...
undiagnos... Feb 16, 2009
Monday, February 16, 2009 |
One of those days, weeks ,months.....
I need pain relief and my life back1 Recommendation -
I have a journal over on CarePlace: http://w...
SuRi1 Oct 16, 2008
Thursday, October 16, 2008
I have a journal over on CarePlace: http://www.careplace.com/blog/27840
The Dercum's Disease support group at CarePlace is active and friendly -
I was giving my view on this subject and a bunch o...
chronic630 Sep 29, 2008
Monday, September 29, 2008 |
I was giving my view on this subject and a bunch of poeple now hate me for my thoughts and values. Well, thats just too dam bad. I still think I am right. I do not have sympathy for the person who stole the med's and DO have the upmost sympathy for the victim. But revenge is mine sayth the Lord.1 Recommendation -
Neeva Sep 18, 2008
Journal Entry for September 18, 2008
Thursday, September 18, 2008
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Well, I received a series of non-invasive...
Neeva Sep 18, 2008
Journal Entry for September 18, 2008
Thursday, September 18, 2008 |
Well,
I received a series of non-invasive medical tests and waiting for results that will hopefully reveal a clinical diagnosis.1 Recommendation
A journey of pain towards a painless existence.
Friday, July 10, 2009 |
Hi everyone, my friends and others I have not met. I am still trying to figure out this site so if I have not responded to you is because I have not ...
1 Recommendation
Dercum's Disease Information
Adiposis dolorosa, also known as Dorcum's disease, is a rare disease characterized by multiple painful lipomas that arise in adult life. It occurs most often in obese postmenopausal women, but can also occur in men. The fatty tumors are most often located on the trunk and limbs with sparing of the face and hands. It was first formally described by Dr. Francis Xavier Dercum.
See more Dercum's Disease Information.
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