What is Dementia

Dementia is the progressive decline in cognitive function due to damage or disease in the brain beyond what might be expected from normal aging. Particularly affected areas may be ...

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Advice:
Help with my mother's dementia
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Here's my problem and I am hoping that I can receive information on what to do. I am completely at wit's end and need some advice. My father of 81 years just passed away 3 weeks ago leaving my mother (his wife of 55 years) living alone in the house that they shared. My mother has been diagnosed with early onset dementia and also has cataracts and is also agoraphobic and now has depression to deal with. That is only the tip of the iceberg. She will not leave the house to go to the doctors. She flat out refuses to have her cataracts removed ( she would be considered legally blind) she will not change her clothes or wash her hair or take a shower . When we ask her why she won't her response is "I just don't want to" . We have looked into having someone come to the house to help her and sit with her and she flat out refuses. She accuses my brother of doing things that he is not doing. She hears noises that are not there and cannot remember the days of the week or even what she had to eat three hours previously. I live 400 miles away and my brother is the main caretaker. When I speak to her on the phone she seems completely aware of her surroundings and what is going on and speaks of dealing with my fahter's death one day at a time and saying she will fight to get thru it but then turns around and tells my brother that she will never go back to the doctors and there is no use taking her medications. She will not do anything except sit in the lounge chair and get up to eat breakfast, lunch and dinner and then goes back to the chair. When her friends or relatives come to visit she seems completely coherant and have had them say that they see no problem with my mother besides her eyesight.

Well I have probably said to much to begin with but I am absolutely dumbfounded on how to handle this situation. Any and all support, help and advice would be greatly appreciated. Thank you!
Posted on 04/17/09, 06:04 pm
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Advice:
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Reply #1 - 04/19/09  8:02pm
" Have you tried talking with her directly, letting him/her know exactly what's going on? "
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Reply #2 - 04/21/09  5:58pm
" Someone must intervene immediately. Whether you or your brother. If you let things go as is, at some point in time, she will panic about something imagined or just her interpretation of an event and call the police for help. They are obligated by law to call l DFYS or DCS or Adult services and they will take your mother into their custody and you will have nothing to say about it. They will be granted custodianship and you will need to hire a lawyer to regain control.
My mom lived alone until last year and I got the dreaded phone call from the State warning me if I did not make immediate changes they were going to take over. If they did, Mom would have been moved to some hell hole of a nursing home and I couldn't do a damn thing about it. I had to immediately fly to Florida from NJ and try to smooth over things. In the end, Mom is now here with me which satisfied the case worker and she closed the file.

Your situation is similar to mine, but I was the caregiver from NJ trying to manage things in Florida.

Regards,
Lisa "
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Reply #3 - 04/22/09  3:18am
" It may be that communication with your Mom is blocked by the disease. There is a very good DVD which is a film of a four week class taught at a hospital in Colorado that explains the disease. I got it form my local library. It is found at www.hcinteractive.com/savvy.

The instructor explains about the changes in the brain which occur and why someone can appear normal in some circumstances but is obviously not dealing with life in a realistic way. I found it very helpful to understand what was happening with my sister. It helped me understand the difference between her personality and the disease. I can now recognise symptoms of the disease in her actions. good luck "
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Reply #4 - 04/29/09  12:44pm
" you need to check into a care faciality they are not all bad my husband is in one and they are caring and wonderful to him and my family we see him when we want and take him out when we want to visit and see a dr. for some meds tell her shes going for a ride I know its hard to lie to them but someimes you have to for their own good "

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