What is Deep Vein Thrombosis DVT

Deep-vein thrombosis, also known as deep-venous thrombosis or DVT, is the formation of a blood clot ("thrombus") in a deep vein. It commonly affects the leg veins, such as the femo...

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Discussion:
Feeling Scared.
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I have a huge Dvt running the full lengh of my leg up in to my pelvis area.
When I was in hospital I had breathless and chest pain with every breath I took , I honestly thought I wasnt going to make it.
I didnt sleep for three nights or days because I was terrified I would die in my sleep Finaly I started to sleep after my consultant gave me a senative,s while I was in hospital.
Trouble is since I came home, I hate going to bed at night, I stay up until my husband insist,s I go to bed which is usualy late.
I find it hard to sleep and have my mobile phone at the side of me just incase anything was to happen. I get chest pain on and off dueing the week and it realy worries me.
When I do eventualy drop to sleep I wake up every two hours or so and are up at 6.am in the morning .
I did have a echocardiogram a few weeks ago which did show I had fluid on the heart but was told it was probably due to my DVT.
Does anybody have these problems/ worries or is it me being over sensative??? Please feel free to drop me a line. Maggie x
Posted on 10/29/09, 02:10 pm
16 Replies | Most Recent Add Your Reply
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Reply #1 - 10/29/09  3:45pm
" Maggie,

I have similar anxieties about going to sleep. The episode that sent me to the hospital started by getting out of bed. I was feeling great that morning until I stood up out of bed, then everything hit and I was in ER within an hour. Going forward it still seems that my symptoms are much worse when I get up in the morning so now I'm scared to go to sleep at night. I take anxiety meds occassionally but I don't want to get hooked on those so most nights I'm up til 2 or 3. I haven't figured out how to get past this, although I'm hoping in time as my symptoms go away that my anxieties will follow.

I wish I had a solution for you but know that you're not alone.

Best of luck,
Twila "
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Reply #2 - 10/30/09  5:46am
" Thankyou Twila for your reply. It is nice to know I,m not the only one suffering for anxieties.
I suffer all day every day, but nights are worst for me.
Im not on meds for anxiety Im, trying to think positive but am finding it hard. I try to explain to my husband and but he cant relate.
Because I have a broken foot that wont heal and with my DVT I cant get out much because of discomfort and pain.
At the moment Im taking everyday has it comes but its very boring. Its been four and half months now since I broke my foot but they cant operate unti my massive clot has despersed. I would realy like to walk again. Maggie "
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Reply #3 - 10/30/09  9:52am
" I could fall asleep but I would wake up in the middle of the night very scared and feeling anxious.

I had a lot of anxiety after the PE/DVT. It's very common. I started suffering panic attacks so at that point, I felt like I needed to take action. I saw a therapist to help me work it all out. I went six times and felt like I was able to work through the anxiety better. It really helped me to just talk out all the crap that was constantly running through my head. It was the best thing I did for myself. "
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Reply #4 - 10/30/09  11:56am
" Thanks RMP, a friend suggested to me listening to some music, so Im gonna get my personal mp3 player out to night and give it ago.
If that doesn't I think Im gonna talk to my doctor. Maggie x "
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Reply #5 - 10/30/09  2:15pm
" Yeah, I say try different things that will help you relax and slow down the thoughts- music, meditation, writing, whatever seems to work. I did some creative visualization and positive mantra stuff. It was all stuff I'd normally call new age hooey, but it really did help with smoothing out the edges.

I had some heart issues too from the PE, but eventually it cleared up.

It's tough for you right now because of your foot. Once you are mobile, moving around will help with both the mood and the sleep. Recovery can definitely be a lesson in patience. "
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Reply #6 - 10/30/09  6:09pm
" How long ago were you diagnosed with your dvt? I found that it took me quite a while to get over being afraid after mine was found. I was scared to do anything. Finally when I got to see the vascular surgeon and the oncologist, they reassured me that it would be ok, and what I should expect. I found myself praying alot and thanking God over and over again for protecting me, and not letting the clot break loose and go to my heart or lung. Believe it or not, that did help alot, just thanking him. "
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Reply #7 - 10/30/09  9:05pm
" I experienced of lot of sleep difficulties after leaving the hospital. Since I had been there over a month, I initially assumed it had to do with the hectic schedule of the hospital setting (particularly the ICU). However, I did continue to experience trouble with going to sleep (anxieties,I guess) due to fear and feeling a lack of control over everything in my life, at that time....it did, over time, improve as I gained information and got my blood levels evened out....The symptoms of my DVT hit as I stepped out of bed one morning (clot from knee to upper thigh at that time whoch gre into my abdomen while hospitalized), so I get anxious until I step those first few steps each morning...things do get better over time, though! :) "
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Reply #8 - 10/31/09  6:32am
" Hi dkorfhage,
I broke my foot 31st May and was diagnosed with Cronic DVT on the 1st September.
Yes my main worry is the clot breaking of and going to the heart and lungs too.
Before I broke my foot and got DVT I was a very active and the life and soul of any party.
I cant straighten or bend my leg has my leg is still to painful and swollen. I do very little cause the pain from my foot and leg make me exhausted. But I still push my self a little to walk around the house with the aid of my Cruches.
Hopfully with time it will get better.
Maggie x "
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Reply #9 - 10/31/09  6:52am
" Hi Cocord, Yes I can totaly relate to this. can't sleep, anxiety ect.
I cant stand not being incontrol of whats happening in my life.
I wish I could wakeup and all would be ok and all of this would have just a bad dream. (Wouldnt we all )
But I suppose if we didnt have the bad we wouldn't appreciate the goods times.

Take Care Maggie xx "
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Reply #10 - 11/01/09  2:38pm
" Try to take a sleep aid if you need it like ambien or lunesta whatever. Also relax tie deep brreaths. Eat well. Exercise if you can. Staying stationary is not good. Elevate your leg. We all worry. Take something for your anxiety it's ok don't feel you shouldn't. Indica strain of marij. Is calming. Only if legal in your state. GABA, herbal sleep formulas, htp is calming. Take 400mg magnesium it's very calming and good for your heart. I hope this helps. It's ok to be scared, we all have a daily wake up call of our mortality! It's very scareyand weird because others around us refuse to believe something is seriously wrong with us. Most of us look just fine!! "

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