Cystic Fibrosis Support Group

Hi Megan, So sorry to hear about your diagnosis. My son, who's 5 has CF. what is MRSA?

Oh My!!!

MRSA is a staph infection that is resistant to anti-biotics! They call it a "Super-bug." I'm under the impression that many of us can carry it, but it may not affect us, and it's not an issue until it causes an infection.... reactive instead of proactive... just like the government

It seems to me that CF patients may be more likely candidates for this infection, because you guys take lots of antibiotics...

Did you get it from the hospital or clinic?! Do you know how they intend to treat it? Did it show up on your skin or in your lungs?!

I gather that this infection is more of a pain in the ass than anything else. However Miss, your new place is full of new germs that you aren't used to!!! Try to keep your space clean... wipe surfaces of your apartment with disinfecting wipes/sprays whatever... ESPECIALLY the shower!!! Wash your hands and don't share towels or razors, or wash cloths... cups even, I wouldn't even share a drink!! Whatever about being rude, you gotta protect yourself.

Never had it, and not so sure of it's long term affects, but if you ever need encouragment... I'm here for you

Oh great, now to top it al off I have a "Super-bug!" It showed up in my lungs. Nothing has happened on my skin, just lungs. I hope I didn't get it from my new place. The doctors in North Dakota didn't explain it much, I wouldn't expect them to. They aren't very on top of things. But in Minneapolis they really haven't said much about it, I'm a little confused. I don't know much about it. I have to start getting some answers and soon.

The doctors said that there is a med for mrsa. Just about every hospital has someone who has it. So far PATRICE DOES not have it.

Wyatt had grew it out once before but on his last few cultures he has been negative for it.

My guy has cf and they told him he's got MRSA too, but in his lungs.

im 33 and grew this for the 1st time a few months ago...it bothered me also...i took a week of vacamycin (sp) by IV and i have not cultured it since. hope u have such luck...

This might help:
I talked to one of the nurses at the hospital who specializes in cf. She told me it's common that cystics will get MRSA in their lungs. Usually, you'll test positive for it, and not even have symptoms. It's like how you can test positive for mono when it turns out you can't ever recall having mono.

Hey Megan,
I have tons of CF friends who have either had MRSA (pre-transplant) or have it now. When their docs think it's their MRSA causing their flare-up, they just use certain antibiotics that specifically target the MRSA and they get better. I have actually had a couple of friends get rid of it permanently, but usually you are stuck with it. It's manageable though, and shouldn't affect your eligibility for transplant if you ever decide to go that route. Hope this helps!
Christy

PS.. one of my best friends has had it for 8 years now, and is still doing great!

Oh.. and MRSA means it's resistant to most antibiotics.. You will still find some like vancomycin that works on it. I think it stands for Methicillin resistant stapholococcus aureus.. not sure about the spelling. Staph is a gram positive bacteria as opposed to our pseudomonas which is a gram negative... just means they will use different antibiotics to target it.