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Discussion:
help....lost and scaired
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I was dx when i was 24 and have only really had stomach problems and as of tonight i have been adamited with reap problems. I cant even take off myf O2 long enough to go to the bathroom. I am scared beyond words. I have never wven been on O2 HELP....
Posted on 04/14/12, 05:51 am
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Email me when others reply to this topic help
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Reply #1 - 06/12/12  8:56pm
" How are you doing? Are things better for you! I am a parent with a son 19 who has CF and has had alot of issues. Insulin diabetic, Cirrhosis of the liver (severe liver disease) , enlarged spleen and cronic lung infections.

Hang in there, you have alot going for you, hopefully this is just a small set back for you and will hopefully get better. I know the more active you can be the better you lungs will be.

Sherri "
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Reply #2 - 07/12/12  3:15pm
" Hi

Im so sorry to hear about your health, I do know how scary it can be when it all happens at once and you feel so unwell! Im Natalya and I I have had m.e for two years now which has been incredibly challenging. Prior to getting m.e. I also suffered with chronic knee and hip pain for several years. So I know what its like to feel social isolated, in pain, depressed and to lose your friends and identity. I am on my way to recovery and have found numerous things to help me cope on my journey and would love to support you and others in your position. I was thinking simply calling for a chat or emailing to start with, as this is easier to do on bad days.
just drop me an email at natalyav771@hotmail.com , im more than happy to chat anytime! really hoope tis finds you on a better day! "

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