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Advice:
Loved one has CF
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Hi, I'm new here and I'm more than likely one of the youngest people on here. I'm 17 years old and have been dating someone with CF for almost two years. Lately things have been more rough than normal. He's been in and out of the hospital since before Christmas with cluster headaches and crackles. He has had to spend Christmas, his birthday and New Years in the Hospital. We've both been handling it better than we thought we could but today we found out he has to go back in and it was simply a breaking point for both of us. So I was wondering if anyone has any advice at all on how to handle this better or any advice on dealing with and getting rid of crackles for him?
Posted on 01/20/11, 06:52 pm
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Reply #1 - 01/21/11  3:40pm
" First I will say that I am new to the CF game, my twin boys were just diagnosed…so my advise is more just about life. Just from what you wrote above I can tell you are an amazing young woman. I remember my first love and the idea of him having any illness would have more than I could have handled…I would never have been able to compose myself as you are doing! I will also say that what you and your boyfriend are going through is incredibly hard. Allow yourself time to fully experience the fear and pain, lean on those around you allowing them to support you (and if you believe in a higher power pray pray pray and hand it over to them)…then when you are ready pull yourself together and focus on the positive. Your boyfriend is getting the best treatment possible, science is an amazing thing, technology has come so far and I am sure he will be ok! I am praying for you, may you feel Gods presents and may he continue to gift you and your boyfriend with the strength and love to walk through this together with dignity and grace! "
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Reply #2 - 01/21/11  6:43pm
" i just want to thank you for the prayers. Every little prayer means the world to us.I also want to say that I will keep you and your boys in my prayers.
And thanks you it's incredibly hard to keep myself composed especially since it's my senior year in high school and things are moving so fast with the SAT's and graduation and it's tough to handle the news that he has to go into the hospital yet again. And my friend they try to help, and they pray for him but it's comforting to know that I'm not the only one who have people they love battling this illness. I remember when he and I first started dating,I told myself not to get too attached, it's just "high school", but after the first six months anytime he would get sick it wouldn't just affect him, it affects both of us.I thank God everyday to have him in my life and every night I ask him to keep him in my life for another day because without His strength and his love we probably wouldn't be a strong of a couple as we are today. And I'm positive that he will be alright, it's just hard no to worry sometimes when you can't be there with him the whole time he's down there. But you are right! Technology is amazing these days and I know he's getting the best, and I know his nurses really care for him and want him to get well. And I just want to say that if you need someone to cry with, to pray with or to just talk to I'm here! God bless you and your family. Thank you! "

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