Cushing's Syndrome Support Group

So basically I have been living with crushings like symptoms for 7 years now. I have been tested so so so many times and my cortisol levels are getting increasingly higher but very slowly. I have been to so many doctors I couldn't even tell you the names of half of them at this point. But the majority of the rulings are that the levels "arent high enough" or things like that. After living with something like this for 7 years , im ready to just get everything over with and feel good. I am 19 years old going to be 20 in November. I want to get on with my life. My doctor had mentioned something about an inferior petrosal sinus sampling but I also received a call from her today saying I have a decision to make. Either we can "watch and wait" for it to basically get worse and "blossom" as she said OR we can "go at it aggressively" and do the inferior petrosal sinus sampling and then maybe go for surgery. Does anyone have any advice or comments or anything? I just seriously dont know what is best at this point or what to do really. Thank you for your time in advance
Posted on 09/12/09, 01:09 am