Crohn's Disease & Ulcerative Colitis Support Group

I was looking at being part of a study group for that drug and its usefulness to treating UC through my doctor's office (at least I strongly suspect it was that drug, they don't give you the name just the components and makeup of it and in my research I concluded it was the same). I opted not to based on the side effects I had with similar drugs (Remicade and Humira- including MS like symptoms from Remicade) and the lack of positive effect those had on my UC symptoms. I didn't tolerate either of those well so it seemed like playing the same card over again. I do know that the study is still being conducted though through the GI practice in Northern Virginia, so I'm sure there are others going on....

Actually Tysabri is nothing like the TNF inhibitors. Its an entirely new method where it affects a transport molecule preventing certain immune cells from crossing certain barriers such as the stomach.

Sorry then I confused it with a TNF inhibitor that's currently being tested because it was definitely that and the study was not for this one. And in that case, can't help you.

Kelsey, you may have been thinking of cymzia.
Sentient, the black box warning is just too scary for me. When I was on 6mp it shut down my liver and almost killed me, so I am very leary of anything with a black box warning.

Hey Fraz,

Alright. They all sound the same now. Imumab this and Imumab that. Tsy's and Cymz's. I remember reading that it was derived from the ovaries of Chinese hamsters and it was at that point that I just thought- really? This is crazy. I'm done. :)

Yeah, the black box warning is scary. Then again, so is using both Imuran and Avonex at the same time. I worry about what happens when you start taking multiple powerful drugs vs 1 risky drug that teats both. I wouldnt use it if I only had inflammatory bowel disease. There are no great treatments for MS, but this is one of the more effective ones.