What is Crohns Disease Ulcerative Colitis
Crohn's disease is a systemic inflammatory bowel disease (IBD) of unknown cause, that results in chronic inflammation of the intestinal tract. It can affect the entire gastrointest...
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Cyclosporine ?
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Hi there -
My name is Jen. My hubby has UC and just 2 days ago he was released from the hospital after going through a major flare-up. He had been on Asacol for about a year+ and around Father's Day he was bleeding on & off. Then in July he talked with his Dr. about the flare-up. His Dr. prescribed prednisone 20 mg to start. After taking that for about a week or more, his flare-up did not get under control, so his Dr. upped the dosage to 40 mgs of prednisone. After that didn't work for another week or so, my hubby was admitted to the hospital. While in the hospital he was receiving 60 mg of prednisone on an iv drip. Then after 4-5 days of no improvement on the prednisone, we were consulted about considering surgery vs. going with cyclosporine. We prayed & decided that we would try the medical options first b4 going straight to surgery (to get the j-pouch surgery.) It took about 2-3 days for the cyclosporine to slow down the bleeding. Even though the bleeding slowed down, my hubby was still going very frequently -- prolly up to 25 times per day. By the 11th day in the hospital the frequency of his bms had slowed down too - and so the Dr released him from the hospital. Today 8/5 marks his 2nd full day out of the hospital and just over night my hubby had a lot of bleeding in his bms again. We are hoping that his body is just taking a longer time to react to the cyclosporine (now that he's taking it orally vs. getting it through an iv) ... but I was just curious and wanted to know if anyone else has taken cyclosporine and what your experiences have been like!? How about any side-effects you experienced w/ cyclosporine?? We are monitoring my hubby's blood-pressure at home since his family has a history of high blood pressure, and this is unfortunately one of the side-effects of cyclosporine... ... -Jen Posted on 08/06/09, 08:08 am |
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OOPS - sorry, I don't know how to edit my first post --
but I meant to say that "today 8/6 marks his 2nd full day out of the hospital..." and I meant also to write that "We are *thinking* that his body is just taking a longer time to react to the cyclosporine..." .... if anyone has any info on this med, please reply... thanks! 
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Hey Jen-
I've done the cyclosporine thing. I don't really remember the side effects because it was about ten years ago but I do remember that it got me under control enough that I got off of it after a few months and ended up on Imuran and Pentasa. I remember how big the pills were and how disgusting the liquid tasted (I used to mix it with a little apple juice and to this day, all these years later, no apple juice for me!). And it was inconvenient taking it four times a day or whatever. Ugh. I do remember having to check in at the doctor's about weekly. And I remember being able to smell the stuff coming out of my pores- very weird. other than that, as a kid I don't think you care about high blood pressure or whatever because it doesn't mean anything to you so no recollection. anyway- i was on it for a while and then it eventually helped and I was able to stop. I do remember being on it in the hospital and then switching to the oral form and it did seem like it was forever. good luck. Kelsey
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Hi again Kelsey -
Now that my hubby has ben taking the stuff for a couple of weeks I can smell the stuff coming out of his pores too. ... not so pleasant. Plus, we're still waiting for it to really work & control his symptoms...
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