Crohn's Disease & Ulcerative Colitis Support Group
Crohn's disease is a systemic inflammatory bowel disease (IBD) of unknown cause, that results in chronic inflammation of the intestinal tract. It can affect the entire gastrointestinal tract from mouth to anus, and can also cause complications outside of the gastrointestinal tract. There is no known medical or surgical cure for Crohn's disease, but there are many medical...
Hello All,
Based in London... My long story ...please read to understand will give more confidence in cure..
This is not in any way commercial ...'My Fee is you get better from this horrid condition'
Few months back I started to see fresh blood on toilet tissue and feared the worst...cancer...than got diagnosed for possible Haemoroids...colitis ...or procttis..or combination ..Doctors not ceartain.
First of all from my experience and close friend...please dont assume that doctors or even surgeons are very knowledgable on these condition...You may be surprised that during your examination ...some surgeon will refer to text book for help...not always the best sign...and if they cant ..after 2-3 visits give you good answer on your condition...you have a problem...as i have found.
There cure method is almost by trial and error....
In my case i was prescribed Asacol and Prendisolone ...I took for some 6 weeks ...strong doses...NO HELP...and only made things worse...
Side effects: Awful headaches,loss of sleep,terrible Gas,constipation combind with bloody diahrhea,...sounds crazy....general weaknesss ......was not able to clear bowel efficiently....and therefore would get constant pangs to run to toilet...with minor Bowel clearance each time
After eating I would immediately have to run to the toilet...Life was becoming very difficult ...to the point where i could not go out easily....
I than started reserching this problem...and after speaking with someone who had suffered lot of bleeding with similar colitis problem and is now in remmision....able to lead normal life..
cross referencing there cure methods,plus research from two other veryy clever clogs....and adding some other peoples experiences...has eanbled me to get much better in the past week...since starting the alternative cure...
So why do we get these condition or most other illnesses...is it diet ...yes...to a degree...
The biggest cause of our illnesss is simply the fact that our system is not cleansed properly and therefore constipation or even mild constipation (not easily noticeable)...causes nasties to be stored within us and than perpetuates...into all sorts of infections...which colitis is an example of.....
Of course there are other reasons for colitis ...stress is one other biggy...
Below I am going to list the products i am using...but please please ...do some of your own research as to why they work...you will than feel lot more confident...rather than taking just my word...
So the follwing is what I have started using:
Isabgul (Psyllium)...
This is one of the best Natural products of treating Colitis...clinical studies have shown to be as effective as Asacol ...with NO KNOWN SIDE EFFECTS..please do not underestimate this product...
Bee Propolis...
Excellent AntiInflamatory..plus many other benefits...an unbeliveable product for me..and after much research i went into the harrow branch of Holland & Barrett and there found an excellent assistant...who swears by Bee propolis as one of his own main personal Health products.just added confidence to my own reseach when somebody using highlights the benefits....ultimately that is the best proof..
Aloe Vera.... Excellent cleansing properties....but not using as I am using herbal alternative...but will still do the job...
Herbal mix..again no nasty side effects only good (to be taken by above 12 yrs old)
Kali Jeeri (`Centratherum Anthlmn`).....NOT TO BE MIXED UP with Kala Jeera..this is entirely different product..
Ajwain seeds
Methi (Fenugreek) ...this helps greatly with bleeding..
The above mix is extremely good for digestive system...its benefits are quite vast....this in combination of Isabgul is what cured the Lady mentioned before...Bee propolis and Aloe are my addons...
The above has to be mixed in ratio and roasted etc....i can full details required on preparation if requested....
can also be bought in asian grocery stores...atleast in UK...
Dosage
Isabgul (Psyllium)...
2 teaspoons in Warm WATER...after meal ....I have twice a day ...main time is before sleep...
This product can be taken with Milk ,juice ,plain yogurt etc...but has different effects ...with yogurt it helps with diahrea...and can cause constipation BUT FOR COLITIS ...PLEASE STICK WITH warm WATER...VERY IMPORTANT..this helps tremendously with digestion and healing
Bee Propolis
5 drops in warm water first thing in morning ...PRIOR...to any other consupmtion...
excellent pick me up and will aid with Bowel clearance...
The above somehow works well in conjuction with the herbal mix taken nght before bedtime...
Herbal mIx 1- 2 Teaspoon before bed.....(I take 1 Teaspoon )
So how do I feel?? well since stopping the Asacol....much better....Having started the new routine...Early days....No Constipation,minimal gas problem,much better Bowel clearnce...can now go out as dont have to run for Loo....but still have to watch when I eat...better sleep and just feel healthier.....the Blood and Mucus problem is still there..slightly better than before ...but am told 8-12 weeks on this routine...will reduce or stop this problem altogether...
I hope this helps ,particularly if you have tried the prescribed medications which the stronger ones are ...basically steorids...with many side affects...
If anyone needs any help or advice ..please contact me....
Good luck to all...
Based in London... My long story ...please read to understand will give more confidence in cure..
This is not in any way commercial ...'My Fee is you get better from this horrid condition'
Few months back I started to see fresh blood on toilet tissue and feared the worst...cancer...than got diagnosed for possible Haemoroids...colitis ...or procttis..or combination ..Doctors not ceartain.
First of all from my experience and close friend...please dont assume that doctors or even surgeons are very knowledgable on these condition...You may be surprised that during your examination ...some surgeon will refer to text book for help...not always the best sign...and if they cant ..after 2-3 visits give you good answer on your condition...you have a problem...as i have found.
There cure method is almost by trial and error....
In my case i was prescribed Asacol and Prendisolone ...I took for some 6 weeks ...strong doses...NO HELP...and only made things worse...
Side effects: Awful headaches,loss of sleep,terrible Gas,constipation combind with bloody diahrhea,...sounds crazy....general weaknesss ......was not able to clear bowel efficiently....and therefore would get constant pangs to run to toilet...with minor Bowel clearance each time
After eating I would immediately have to run to the toilet...Life was becoming very difficult ...to the point where i could not go out easily....
I than started reserching this problem...and after speaking with someone who had suffered lot of bleeding with similar colitis problem and is now in remmision....able to lead normal life..
cross referencing there cure methods,plus research from two other veryy clever clogs....and adding some other peoples experiences...has eanbled me to get much better in the past week...since starting the alternative cure...
So why do we get these condition or most other illnesses...is it diet ...yes...to a degree...
The biggest cause of our illnesss is simply the fact that our system is not cleansed properly and therefore constipation or even mild constipation (not easily noticeable)...causes nasties to be stored within us and than perpetuates...into all sorts of infections...which colitis is an example of.....
Of course there are other reasons for colitis ...stress is one other biggy...
Below I am going to list the products i am using...but please please ...do some of your own research as to why they work...you will than feel lot more confident...rather than taking just my word...
So the follwing is what I have started using:
Isabgul (Psyllium)...
This is one of the best Natural products of treating Colitis...clinical studies have shown to be as effective as Asacol ...with NO KNOWN SIDE EFFECTS..please do not underestimate this product...
Bee Propolis...
Excellent AntiInflamatory..plus many other benefits...an unbeliveable product for me..and after much research i went into the harrow branch of Holland & Barrett and there found an excellent assistant...who swears by Bee propolis as one of his own main personal Health products.just added confidence to my own reseach when somebody using highlights the benefits....ultimately that is the best proof..
Aloe Vera.... Excellent cleansing properties....but not using as I am using herbal alternative...but will still do the job...
Herbal mix..again no nasty side effects only good (to be taken by above 12 yrs old)
Kali Jeeri (`Centratherum Anthlmn`).....NOT TO BE MIXED UP with Kala Jeera..this is entirely different product..
Ajwain seeds
Methi (Fenugreek) ...this helps greatly with bleeding..
The above mix is extremely good for digestive system...its benefits are quite vast....this in combination of Isabgul is what cured the Lady mentioned before...Bee propolis and Aloe are my addons...
The above has to be mixed in ratio and roasted etc....i can full details required on preparation if requested....
can also be bought in asian grocery stores...atleast in UK...
Dosage
Isabgul (Psyllium)...
2 teaspoons in Warm WATER...after meal ....I have twice a day ...main time is before sleep...
This product can be taken with Milk ,juice ,plain yogurt etc...but has different effects ...with yogurt it helps with diahrea...and can cause constipation BUT FOR COLITIS ...PLEASE STICK WITH warm WATER...VERY IMPORTANT..this helps tremendously with digestion and healing
Bee Propolis
5 drops in warm water first thing in morning ...PRIOR...to any other consupmtion...
excellent pick me up and will aid with Bowel clearance...
The above somehow works well in conjuction with the herbal mix taken nght before bedtime...
Herbal mIx 1- 2 Teaspoon before bed.....(I take 1 Teaspoon )
So how do I feel?? well since stopping the Asacol....much better....Having started the new routine...Early days....No Constipation,minimal gas problem,much better Bowel clearnce...can now go out as dont have to run for Loo....but still have to watch when I eat...better sleep and just feel healthier.....the Blood and Mucus problem is still there..slightly better than before ...but am told 8-12 weeks on this routine...will reduce or stop this problem altogether...
I hope this helps ,particularly if you have tried the prescribed medications which the stronger ones are ...basically steorids...with many side affects...
If anyone needs any help or advice ..please contact me....
Good luck to all...
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Look at what my best friend did with my picture!
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We all have 24 hours in a day. How we spend these hours is important. Watching a little bit of a video about how sitting affects us made me aware of how much sitting and laying down I do. Gonna have to work on that.Your turn. Tell me another truth.
I couldn't find any clinical studies comparing the efficacy of Asacol and psyllium. Can you please supply a link?
Good luck to you! I have heard many good things about psyllium and treating many ailments one may have in nature!
Oct. 2008 was the first time I've seen a doctor for my UC in over 15 years (diagnosed 24 years ago). I've been in remission years longer than I suffered its symptoms, drug free, using diet alone. I'm always interested in hearing what works, and what seems to work, for people suffering with IBD. I myself have tried many, many alternative methods, including some insane stuff. One "cure" I tried was this mouthwash that still used these bugs as die for its red color - swallow one tablespoon a day.
What I'm not open to are claims of clinical proof where there is none, anecdotal evidence passed off as scientific proof, and people who think they have some brand new information, usually barely anecdotal, rarely new, that's going to cure us all.
We need to maintain a high level of credibility of information, not just parroting stuff we read online.
I've in remission for the last few weeks, for the umpteenth time, and honestly I have no idea why. I've taken drugs and gone into remission. I've not taken drugs and gone into remission. I've done all the things that seemed right at the time and have gone into remission. I've done all the things I thought were wrong and gone into remission.
Determining cause and effect is a tricky business and I understand it's hard to resist jumping to conclusions when we are all so desperately looking for relief. If I stood on my head while shouting "pudding!" while eating mangoes on the beach and then went into remission, I'd be hard pressed to recommend this cure to anyone else. A lot of what gets passed off as "alternative cures" is exactly like this.
By all means, keep the alternative cures coming, but lets not suspend reason or the scientific method in the process. We shouldn't get upset when someone challenges our alternative cures either. We are all here, along with thousands of doctors and researchers, trying to figure this out.
BTW, there are side effects to psyllium if you take too much (increase in diarrhea and bleeding), so be careful.
Kew ...I respect your opinion....I am going by what i have seen with this lady that has worked...plus the most important thing the items I have described including psyllium...if taken in correct maaner will rarely cause you any problems...that is why I have even described the different methods of taking psyllium...in different ways,
Do your research on all items....see how you go...
Kew I really dont know how well this routine is gonna work for me...but i am gonna give it a damm good try....and even now feel its going right way...
the flip side...taking CRAZY lethal drugs with truly MAJOR LONG TERM Serious side effects..anything from liver to kidney damage and lot more besides...does not seem the best way forward for me...
Even with all the drug comapny research reporys...produts like Asacol only work 50% of people....that my friend is not exactly helpful...Doctors are effectively saying ...try and find out if it works for you ...if not will prescribe even stronger bleach....sorry medication...
As fo me getting upset about your comments ...far from it ...on the contrary ...quite grateful for your thoughts and opinions....
Diengfrom Uc ...Thanks for your comments...I can understand peoples sceptism ....
I guess the best way forward will be to report if this works ....and if it does ..I will strongly suggest to people...
Good luck to you both and all on here
I always assumed the primary action was to suck up water and add bulk to the stool. If that is the case, you might assume that you are healed then see the same loose stools once the fiber is removed from the diet.
I have sometimes found relief from my UC from taking pysillium fiber but it always seemed like the highly soluble fiber was responsible. I am not aware of any other active chemicals that are found in the seed husk, though there are some that are found in the leaves of the plant that it comes from. I wonder if whole seed powder would have more of an effect compared to just the seed husk.
If supplements work for you, great.
If meds work for you, great.
If diet works for you, great.
If standing on your head works for you, great.
It's clear this disease affects people differently at all stages of their disease. So, whatever helps you is fantastic.
There are just some of us who want the scientific data and studies to be able to make INFORMED decisions, compare treatments, etc. I mean, seriously, some people do more research for setting up a fantasy football league or getting a puppy than researching their medical options.
By the way, I'm all for doing lots of research before bringing a pet into one's home;)
Did I mention I'm in remission?
You know ...I think you are right...whatever works is fine...I guess the initial benefits of the drugs outweigh long term thoughts....As you say the disease effects people in many different ways and at varying stgesof life....
Scientific proof...well...Hmmm...Whilst I totally agree about scientific proof...the big Drug comapnies...have wonderful ways of smoothing there claims...therefore for me ...the best proof is the people who use the drugs or remedies and there ultimate outcome...the rest is ...well ..hearsay...that is why this community is so essential...
Ultimately...
Kew....Mann I tell you standing upside down...trying to eat this pudding...whole new experience...hasn worked though...Ahhh...just realised ...beenn eating choclate pud....should have been strawberry...that will do the trick...phew!!..realised before waisting more time...:)))..
Take care Guys...
What a weird word... "pudding."
So I think it would be obvious to everyone why "pudding" would be the best therapeutic head standing word. I don't think there are any clinical studies on this, but I'm pretty sure I know I guy who did it once.
PLEASE don't take offense at my silliness. After all, I'm the one who was drinking mouthwash dyed red with an extract from the female cochineal insect. BTW, it didn't work. LOL