What is Congenital Heart Disease

Congenital heart disease is heart disease in the newborn, and includes congenital heart defects, congenital arrythmias, cardiomyopathies, and hypertrophic cardiomyopathy (HCM). Con...

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VSD Anyone else like me?
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Hi there, I am 30 years old now, but I was born with Ventricular Septal Defect, that was surgically repaired when I was 8 months old in Richmond,VA At MCV. I have since recovered however as I am getting older they are finding more things going wrong with my heart, such as, mitral valve prolapse with regure,pulomnary stenosis,SVT,PVC's, I still have a heart murmur to this day because my patch didnt close the hole completely from what Im told by my mother my hole was the size if you will of a 50 cent peice which is a huge hole.

IS there anyone else like me with a similar story? I just dont want to feel like Im alone, and to make matters worse I have MRSA also, and just last month was hospitalized because it entered my blood stream.
Posted on 08/07/09, 12:08 am
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Reply #1 - 08/11/09  11:11am
" Most of the people that I know right now with heart defects are kids, but MRSA is the absolute pits. Those of us that work in the health care field just figure that we probably are colonized somewhere. Colonized means that we have a few of the buggers, but our immune system is taking care of them.
With the heart issues, please be careful if you show signs of infection. Because of the blood flow patterns, it is really easy for you to get an infection in the wall of your heart. So, take really good care of yourself, all the rest, diet,exercise stuff.
Heart surgery has come an amazing distance in the past thirty years. It's not surprising that there was residual damage from the initial surgery. I would talk to your cardiologist, see what he thinks about a consult with a cardiac surgeon? It is always good to know your options.
Please let me know if there is anything I can do to help, Diane "
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Reply #2 - 10/25/09  1:04pm
" Hello there. Im 25 an dwas born with a VSD and an ASD. I also went to MCV. I had my surgery at 17. They told me it was close but never did. They actually got larger as the years went by. I ended up with enodcarditis twice. I spent 5 weeks in MCV on meds. I still have alot of heart problems to this day. I hhave a murmur irregular heart beats. I see a cardiologist every 4-6 weeks. Where are you from. I from South Hill. "
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Reply #3 - 11/21/09  9:03pm
" I was born with a VSD. I have since had to have stents, open heart surgery, and earlier this year a valve replacement. Open heart surgery has come a long way and does not seem as rough to get through as it use to be. I was only hospitalized for 4 days and now I feel great!!! "

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