What is Congenital Heart Disease
Congenital heart disease is heart disease in the newborn, and includes congenital heart defects, congenital arrythmias, cardiomyopathies, and hypertrophic cardiomyopathy (HCM). Con...
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my sons chds
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hi im a newbie here so not sure how this works! my son is 8 and has had an op at 4 days for coartation of aorta then at 6 months had a ballon dilation to stretch a valve then last year at 7 he had open heart for subaortic stenosis . i dont know of any other young child who had subaortic stenossi is it rare. the doc says he has aortic stenosis bicuspid valve,he is not allowed do competive sports and ony bit of football in the garden,this is the worst as he loves football so much doesnt understand why he cant play like his friends thanks
Posted on 04/23/09, 07:04 am |
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Usually the aortic valves have three flaps. Your son's has two, plus the aorta has areas where it narrows. Both of these things makes the heart have to work harder to push the blood out through the aortic valve and into the body. This slows down the oxygen supply to his body. That is probably the reason why they have him on some limitations. I know that here in the states we have a new form of aortic valve replacement that should be approved late summer for general usage. The valve is replaced by cardiac catheterization rather than an incision and open heart surgery, It is pretty cool!!! 
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My son was born with aortic stenosis and a variant of hyperplastic left heart syndrome. And now has developed pulmonary hypertension.
He has undergone 6 open heart surgeries to replace both his aortic valve (4 times) and mitral valve (3 times). His last surgery, a double replacement, was 3 1/2 years ago and he'll be turning 6 by the end of the month. I don't have to limit my son physically too much. He's on warfarin, his mitral valve is mechanical, so no contact sports because of the risk of bleeding/bruising. Other than that my son can run and play just like any other little guy his age. I have done my best to make sure he is aware he needs to be careful, but he can still have a lot of freedom to be a regular kid too. It can be tough to find the balance because I want to protect him so much. Life may adjust a little for your son as he ages, but it doesn't mean he can't have fun and live a full life. I wish you and your family the best as you navigate through this.
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