What is Cleft Lip Palate
Cleft is a congenital deformity caused by a failure in facial development during gestation. It can be treated with surgery shortly after birth with highly successful results. Cleft...
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Hi!
I was born with a cleft lip and palate, and am currently a medical student planning to become a pediatric plastic surgeon. One of the things I really wish I had had growing up was the opportunity to interact with other kids and adults with clefts/craniofacial anomalies. My parents have said they would have wanted to attend a support group themselves, particularly for more information on infant feeding, and coping with having a child in and out of surgery. However, I can't seem to find any support groups in my area (as was the case when I was a kid), and it seems that there are very few support groups for people with clefts beyond those on the internet. This really surprises me! So, I was looking to start a support group in my area for kids and their parents. I was wondering, does anyone here currently attend a support group (or does their child? If there was one in your area, would you or your child attend it? If you could attend a group, are there any specific topics or activities you would want? Thanks! Elizabeth Posted on 08/04/09, 12:08 am |
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Hi,
I am a mother of a 2.5yr old with a bilat. cleft lip & palate. We live in the Seattle area and I am desperate for a support group, I too was born with a cleft and I am having real issues as far as teasing goes. I cannot take my daughter to a park without at best kids looking at her with disgust, usually they say something hurtful. I would love to talk with other parents and see how they have dealt with this issue. It is truly heartbreaking to me. 
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Hi,
We live in N. California. Since our medical coverage is through Kaiser, we found our support group through Kaiser. We got to meet great families going through this process as we are. My wife and I are always happy to talk to others who are expecting or going through a child w/ CLP.
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I would love to find a support group in our area for my 8 year old son and myself. We live in west Texas. If you know of any in this area, please let me know.
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