Chronic Pain Support Group

I am thinking like this a lot of the time. I am so lucky i still have days where i can get up, most of the days an hour or two. But then i look at my daughter coming to my bed to have me with her in her play....i hear my friends telling me they need me to fight cause they love and need me. So i do fight. I can´t tell u what your reason to live can be... the one that really keeps u fighting but i am sure it´s there and u need to find it. Don´t give up ! Im here if u wanna talk. hugs

Ecca, please consider calling a hot line in the area you live in, there are people there 24/7 just waiting to help if you call, they care, as a lot of us here do, unfortunatly there is only so much that we here at DS can do. So I urge you to call a crisis support line in your area, your life is not over. We all have things in our lives we are trying to cope with, please reach out for the help that is there for you, please....Tim

Being a former counselor, you know that this deep hole you are in will pass. Are you taking anything for the depression? Maybe it's time for an adjustment. We all get to the point sometimes that we think we can't go on. You have to have hope that one day there will be an answer or help for you. Science moves at such a rapid pace right now. I keep thinking of the things that have changed and been invented in the last 5-10 years and pray that something will help me. Even though you are stuck in your house most of the time, think about things you could do - you're intelligent, how about tutoring or mentoring in your home. Please don't give up yet, there is a future for you...

Dont give up.Being in chronic pain is hard.
We all understand whats it like to be in so much pain.
Please talk to someone that has experience in this area and that can help.
theirs so much to live for.

Ecca I would hope that your Dr or his nursing staff would understand your concern's and frustration's and help you to find a support group with other's who are also learning to live with these changes. There are people out there who will help you learn to live with this, not just get-by or survive but really live a full life.
These are some numbers provided by daily strength if you are in need of immediate help:
USA: Hopeline (Suicide): 1-800-SUICIDE (1-800-784-2433)
USA: Suicide Hotline: 1-800-273-Talk (1-800-8255)

USA: Grief Recovery Helpline : 1-800-445-4808

Also slowmoving is right it sounds to me like you may need to talk to your Dr about these feelings of desperation.
Please take that step for yourself, call your Dr or one of the help-lines.
My Aunt has MS and has had to learn to live with an indwelling catheter also, it sucks but it can be done and it shouldn't be the end of your social life, and most certainly not the end of your life!
Please hang in there and let us know how you are doing.

Ecca - I can't imagine what it must be like to live with a catheter, but I do understand the despair you are in. I have had those feelings myself and it is a terrible place to be. If you are not in counseling or taking antidepressants then maybe this is something you need to look into. You need support. Please do not give up. You have the right to be angry and frustrated - and you need to be heard. You need to talk to a professional. The last thing you need right now is to be alone. I have been where you are right now. I was dangerously close. I can't believe I felt like I was a burden to my own child. Please call one of the suggested hotlines and seek professional help and please keep us posted. You are in my thoughts and prayers. With the right treatment YOU WILL FIND HOPE. A friend of mine told me "God doesn't ever give you more than he knows you can handle". It sounds crazy, - but it means that you are absolutely strong enough to handle anything that comes your way. (Although in my opinion it doesn't seem fair that some of us have much bigger burdens)But whether or not it's fair, deep down you are strong enough. But you need an emotional boost. Please don't give up - know that we are all thinking about you, worried about you and praying for you. Keep us posted. -Jennifer

Please!! Don't give up! You have a "family" right here who loves you! Like slowmoving stated, we ALL go through these feelings from time to time, but who knows what tomorrow may bring?! Because your life is like this now doesn't mean it will stay like this. You need to tell your Dr. asap how you're feeling. If you can't make that call, ask a friend to make it for you (I reached a point where that was necessary) but there are always options. I'm here for you (usually up most of the night) any time if I can help. Love and hugs, Peggy

Please if you are serious, call for help. I know I have felt this way many times and I'm sure I will again. When I am deep in a flare is when it gets bad for me. I alway say no one should have to live like this! I am lucky to have a husband with a sense of humor and knows when to retort back to me.

All I can say is we all DO care and we do really know how you feel.

Melissa

u didnt cause this to happen to u, it just happened. Dont blame yourself because it will only make things worse. I live in 24/7 chronic pain and I can't even eat. I am so sorry you are dealign with this, please dont give up, pray for a healing, God can do anything if you have faith.

Being in horrible pain all the time all the time can just wear you out. It takes a toll on the spirit. Most people just dont understand how draining it is to be in pain all the freakin time. It gets so old so fast. The pills do not take it away, they just turn it down a bit, sometimes just enough to get something done or have a good nap.

I was born with a kidney disease and had to have a catheter after each operation. It hurt because I strained against it, I also had the balloon thing in my bladder from age one to eleven, that hurt all the time, they were stretching my tubes from my kidneys to the bladder. I will tell you that I miss my old life, I get so depressed when I cant move, or the acid in my system is burning holes in my skin, or my arms are numb, or my feet are numb and it is too dangerous to walk. I feel that if I take my monthly supply of morphine, I will just float away and not have to have this freakin pain, then I see my Moms eyes, my families eyes, heck even the eyes of my dog, and I couldnt do it to them. I see what losing my brother from cancer did to our family and that sort of sealed my deal here for now.

It is important that you are able to share your feelings of grief, saddness and dispair, most of us will understand as we have been there too. We need you here, I hope that you will consider trying to find some local support to help you through times like this. Is there something that can be done to help your situation? What pain meds? What did they do to you? Do you mind sharing?

Please hang in there with us, we are a motley crew, but we have good hearts...

Pan