Chronic Pain Support Group

Welcome to our special little group...=)

-Kyna

Hi and welcome to ds.Hope your able to get the support you need.
Chronic pain cant be seen on x ray and that.
Have you seem the pain specialist ??
Go to your gp and ask for a referal.She/he will be able to give you stronger medication.
Going to the er, they should write you a referral to the pain clinic.I went to the er and got referred.

what's a pain clinic? I've been referred to that before for my shunts hurting, but I never went because I thought that by my neurosurgeon referring me to that, he thought I was making everything up or something. And yes, my NP did mention that I could try a pain clinic, but she doesn't think that the doctors would do anything differently than she's doing. IDK!

Hi there!
Welcome, we're so glad to have you here! (But not at all glad you're in pain, of course.) Here you will find understanding, sympathy, information, intelligent conversation, friendship, and lots of laughs too.
I, too, have chronic pain in my pelvis, but it is musculoskeletal in nature. I have pelvic instability from unstable sacroiliac joints and an unstable pubic symphysis. I totally understand that pelvic pain can be TORTUROUS. You use your pelvis for every movement and even to stay stationary, and so many important, sensitive organs are located there.
I don't know if you've ever checked it out, but there is a VERY active Yahoo group with many women who have problems very similar or precisely like yours. http://health.groups.yahoo.com/gro...
I am by no means saying you should go there instead or anything, as this group is just plain awesome, but you can get additional - illness specific - support and information there.
I am so VERY sorry for the pain and suffering you're going through. You should by all means continue to seek out proper treatment to lessen or get rid of your problem. If your NP says there's nothing more she can do for your condition, I would look for answers elsewhere! These days, you must be your own advocate for your health care, and actively seek out treatments to help your problem. If one doctor isn't cutting it, my advice is to look elsewhere. As far as pain goes, Your NP obviously doesn't understand pain treatment very well and probably doesn't feel comfortable prescribing you the kinds of medications that will give you enough pain relief to sleep soundly and function better while you're working on treating your condition. A pain management doctor can do that for you, so I HIGHLY recommend that you visit one and make them a part of your treatment team.
If I can offer any other help or support, just send me a message, and once again - WELCOME!
With lots of caring,
Orchid

I agree that finding a pain specialist should be at the top of your list. Welcome to the group and I know that you will find support and understanding here.
Hugs to you Binet

welcome to the board. I am glad you are here, you will find many wonderful people on this site. I hope your pain lets up soon

Hi:
Just wanted to say hello, and I too have hydrocephalus with a shunt, so I know all about the pain from fluid etc, not draining. For me what makes matters worse is that I continually have "Blackouts" on almost a daily basis. I talked to my G.P. some months ago (actually late 2006), and he told me that it was related to stress and anxiety. But now some time later these Blackouts and increased pain have gotten worse. As a result have had a terrible time trying to manage and function. Anyhow not to bore you, but I thought maybe we could exchange our experiences and try to help each other get through this painful ordeal. Feel free to view my profile if you like. Hope you get some relief soon.

I would keep looking for a good dr, they are few and far between but dont give up, call and ask questions, if they sound like jerks on the phone, they are jerks, you need to find out why this is happening and have a bit more decent pain management, I dont get the attitude of some of these drs. It makes me want to scream, go back to school, become a dr, open up a nationwide pain management office and take care of all of these poor people that are in pain and told to take a tylenol... gee, thanks... I really hope you will like it here, welcome..

Paindora

Thank you all SOOO much for the warm welcome!

welcome, i have chronic pelvic/low back pain, i have had a h hyst and many laps to reduce endo, stil have pain! I take pain meds and go to a pain clinic, where they beleive me, try finding a pain doc.