Chronic Pain Support Group

Thats a tough situation to be in.. I'm so sorry. It's tough living with CP and not having the support at home that we need. Most people who don't suffer from CP will never understand what were going thru. They think we're able to just take a pill and feel better all the sudden. It's such a complex problem to have because of the diagnosis it's self. If you were diagnosed with cancer he'd probably treat you differently, better. Try to take it day by day. Rise above it. Just know that you do have something that is disabling and try to cope with that the best you can. Don't look for acceptance from anyone, chances are you probably won't get it. I've given up on anybody in my circle of life understanding my CP. If they accept it and want to understand it, then great if not, to bad for them. Work on you getting better and to hell with everyone else. Once you let go of wanting people to understand what you are going thru, the sooner you can get your life back. Your in the right place for support! I've learned so much since joining DS. I can't even think about were I'd be today if I hadn't joined.. take care and hang in there.

~gentle hugs

You could criticize him for not cleaning the house. In my life most of my family do not care to understand my life of chronic pain. None of them understand even the ones (my parents only) who want to understand. For him to criticize you for what you have no energy to do is antagonizing and discrediting you. That's worse than not understanding. I would ask him if he cares to understand what you are living with and how it affects what you can and cannot do. Take him to your doctor's visits, Find good info on Fibro, chronic fatigue and chronic pain online and print it out for him to read. He may never 'get it' but he might get enough knowledge to at least discontinue the nagging and criticizing. I hope the best for you in this. : )

Sherry

Hi,
Knowledge is the key often times. Most people are ignorant about chronic pain the DISEASE and how it affects quality of life. Let me know and I will give links to some amazing articles.
And good grief your pain care is terrible!

Best wishes,
Tami PRN

I am sorry to hear of your situation. I was in the same boat at one time. He kept saying that I needed to work so thats what I did worked. Then when I got home there was nothing left. I was on the couch for the rest of the night. Well this worked for about 1 year. Him working and coming home cleaning and cooking and doing the laundry .
Needless to say after that going on for a year suddeenly we didn't need the money so much. We can only give as much as we can.
I also agree with AZSHERRYBERRY to take him to the doctors with you. That is what i started doing and the doctor looking him in the eye telling him that I was not joking or lying that I am in pain and was ready to crash bigtime did alot more than me telling him.
It is hard when the one we are suppose to count on isn't there for us the way we need them to be. Even though my husband has had a taste of what I go through and has been told by the doctors sometimes he still isn't there for me like I need him to be. That is why I am so thanfull for this support system on here. We are not alone. There are people who know what it is like.
Maybe once he has an understanding of what you are going through hopefully it will change his way of thinking. I hope things get better for you.