Chronic Pain Support Group

I hear your frustration. Living in chronic pain is horrible. The question is - why are you living in so much pain? I dont mean what caused it, but why isn't more being done about it if you are suffering so much.

With so many medications on the market, there is no reason anyone has to be this miserable. There are many levels of pain managment, all the way up to a pain pump.

There are countless narcotics, many effective natural remedies, natural approaches such as massage and accupunture, then there are the big guns such as a pain pump, spinal cord stimulator and occipital stimulator.

If you are seeing a pain managment specialist and he is leaving you in this condition - its time to get a new one who will help you. If you are not seeing a pain managment specialist, then its time you do.

You may never be 100% pain free - none of us here are. But you dont have to suffer all the time either.

I hear you. I wonder what is the point of living through all this pain. And then I look at my kids and my partner. That is why I keep going. I have been referred to a pain management clinic, and have high hopes for what I will learn there that will help me deal with this.

I don't know what causes your particular pain...but I suffer from fibro. I take Lyrica and Percocet just to deal. Some days are better than others.

There are little things you can do. I started painting. I started to sew again. These little hobbies that don't require too much of you keep me going.

hi im new to the site and forum thing but ive been in chronic pain since 9 3 06....No life is not suppose to suc at all im srry u r havin a ruff go of it....maybe a nice hot soak in the tub with your fav music will take the edge off.for a lil while...im hopin to be a posative lite in this dark world of pain....atleast ive found a place where people understand hope u feelz better
PainFree PrayersForAll (pfpfa)
Brad

I hope you don,t mind me leaving you a message about my mum? [this is mum,s site] right now my mum is very ill, like you she has had a gutfull of being in pain,it has got so bad that she has discharged herself from hospital,my mum has been so let down by her pain doc that she has discharged herself and has stopped taking her morphine,i can honestly say right now i am scared,my mum is now going into withdrawel and refusing to go back to hospital we as i am writing this to you we are waiting to see if the hospital have managed to get a court order to get my mum back into hospital,my dad left her after 25yr because he was fed up with mum being ill all the time and also cuz he got himself a tart,i understand your frustration i have seen my mum go to hell and back and although i don,t live in pain seeing my mum in agony is enough for me, please try to stay strong,i know it can,t be easy for you i have seen my mum literally climb the walls in agony try to stay strong i hope you are feeling a little better soon callum

Dont give up, we all have days like that.We just want to have a normal life and do things other people our age are doing.
Chronic pain is like just living.Some good days and some bad days.
Get yourself a hobby that you can do when the pain levels are high.You can lose yourself in a hobby and not think about pain.
Their is hope out their, that some day we will have our problems fixed.

I know exactly how you feel, and my husband doesn't always understand either, but I will never give up. Someone mentioned earlier that if you are not getting the help you need, get a new doctor. I just went through that, and so far so good. Just know that we are here for you, whenever you need us. We DO understand!

Laura,
That's exactly how I feel. My sisters think I'm a drug addict because, god forbid, I should take pain killers so I can summon up enough energy to get to work. I've never experienced so much discrimination.
Do you have a good pain management doctor? After a year and a half, I found a dr. who would dispense opiates to me. And then there's stigma filling it the script.
I fucking refuse to live in pain like this if Ihere's a solution. You can, too. You just need a good pain management dr who believes you. I don't really want to go on either, but I read that I have to because maybe in the future there will be medical advancements.
Laura, my life has been ruined, too. We have to find some quality of life.
I'm with you and I understand,
-Gloria

I sympathise 100%!

My life has gone steadily downhill this past year as my pain has got worse, reaching the point at which it's a constant feature.

My GP is great, always willing to try something new, as one after the other of my meds has failed to ease my pain.

However, I still have to deal with pain on a day-to-day, night-by-night basis. My mobility is severely limited; I camn't walk further than 100 yards, even using my stick and am dependant on my wheelchair to get me round supermarkets to get the shoping done.
I sleep very little and can't keep on top of the housework.

I suffer bouts of deep depression, when I wonder whether it's worth carrying on......

Then I look at my darling husband and our younger son who's the only one still at home and I know why I carry on.

It's an unavoidable truth that no-one who doesn't live with chronic, constant pain can even begin to understand how it impacts on every aspect of one's life.

My husband tries to be patient with me, but there are times when he gets fed up of me not being able to function.

All I can say to you, my dear, is that there are good folk on this site who understand and are happy to offer moral/emotional support.

Keep talking to us.

Laura,
I know exactly how you feel, been there done that! and I live it 24/7. What kind of help are you getting from your pain management Doctor? Do you have a PM Doc? If you do, he needs to work on changing your meds, dosages, etc... to control your pain, if you don't have a PM Doc is time to find one pronto!!
And if you have one and he is simply not doing his job, is time to fired him and find yourself a new Doc that will care and keep you at minimal pain.

Don't have a pm Dr.Very frustrated today. My knees are now really starting to hurt in addition to my back. I called the Dr yest & they never called back so I called them again today. I know they are tired of hearing from me but if they would just fix it I would'nt call.I can't even get up from the floor anymore without someone helping me. The back Dr said it might be psycosomatic even with the MRI & x-ray results but he still wanted to try a cortisone shot.Im sorry I am just having a bad day. I think I need to cry for a while! Its bad enough to be in pain but for them to treat me like crap is worse.:(