What is Chronic Pain
Chronic pain becomes chronic when it persists longer than 6 months and is resistant to medical management. Millions of Americans are chronic pain patients and some exper...
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My mum and i live in the u.k my mum suffer,s in acute severe chronic pain 24/7 the problem is right now my mum is totally devastated and i don,t know who to turn to,today she recieved a letter from her pain managment doctor basically telling her he can,t get her the painpump she so desperatly needs,now she is crying her heart out upstairs and i can,t help her,the thing is,it was her pain doctor who started all this,he was the one who said she would benefit from this dammed pump,he was the one who sent her over 125 miles away to another doctor,he was the one who told her tell him if i can be of any help what so ever then let me know,what a croc of crap!mum was told by the surgeon yes i,ll do it for you as long as we can find someone to give you the refill,s locally,mum was well chuffed and was so happy,but as typical with so called doctor,s her pain doctor told her sorry i can,t help you! can you believe that! that arsehole has sent her on wild goosechases for what? he was the one who told her about this and now? well now my mum has no more hope,now she has told me f--- em! i don,t want anymore of this crap! i have done everything they have asked me to do, for what? so they can send me on wild goosechase,s and a handful of lies, why bother? i don,t blame her for being upset but i don,t like the way she is acting,she is suppost to have an endoscopy next week because she,s got a lump in her tummy the size of an egg,she has just cancelled it and i,m worried she has also told me i,m not talking anymore morphine,please can someone help me? i know she,s depressed and this has really made it worse but mum,s mate who is a nurse has told me if she doesn,t take any of her morphine her body could go into shock, i just dunno who to talk to right now.callum
Posted on 06/20/09, 04:06 pm |
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I immagine your mom is very depressed, the things that we have to deal with can be exhausting and make us want to give up. Pain 24/7 can be almost impossible to live with. And her mate is correct she will most likely go into very bad withdrawals from the morphine if she stops taking it cold turkey, so you and her mate need to convince her not to do that, because it will just make her suffer 100 times worse. also once she calms down maybe her mate could talk her into going ahead with the endoscopy, explaining that having that done and removing the lump if thats that plan could make her better. Right not she's going through a period of irrationalibity but hopefully soon she will get back to the point of realizing that she has to keep fighting this. All you can do now is just be there for her and let her get all of her anger and severe dissapointment out of her system, just stay with her and make sure she stays safe. 
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Oh hunny- I can't even imagine what you and you mother are going thru at this point. To be lied to by doctors makes you feel so hopeless inside. katlyn40 is so correct.. Please please please don't let her stop the morphine cold turkey. That is so dangerous. She will inevitably end up in the ER if she does that. That definately won't help her situation. I know it must feel like there is no hope left but she has to try. Easier said then done, I do know. is there any other doctors she can start fresh with? She should get her medical records and start calling doctors for appointments. I don't think she should give up. She's obviously a strong person if she's made it this far with all she's going thru. Sometimes we have to drudge thru all the muck and yuck to find the good stuff. I think she will prevail in the end if she keeps fighting for her rights. She definately needs to have that lump removed. That's so important. I know it's tough for you to find a way to help her but your obviously a strong person for being there with your mother and asking DS for advice. And it's ok to feel betrayed and saddened by all this time will heal anger and saddness will get a little better everday. Please keep DS posted on her treatment. Hang in there sweety.
~big hugs
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I know she must feel hopeless by this. Until she is able to process this information, there is not much you will be able to do to convince her otherwise. Let her do what she needs to in order to come to terms with just happened. Not too long though, she does need to make sure she continues her morphine. But if the problem is that the surgeon won't do it unless someone can give her refills locally, and the pain doc is not willing to do that, find someone who can. Ask the surgeon's office for help. Go everywhere and anywhere you can find info on this. The best help you can give your mum is to help her fight this battle while she is unable to do so herself. Try the surgeon's office first. If this is a requirement, then maybe they know of doctor's in your area or closeby that does do refills. She needs hope and maybe right now you can give it to her. Maybe not. But give it a try. And I agree that she needs to follow through with the endoscopy. The last thing she needs right now is something else getting worse and getting her down. Good luck and keep us up to date.
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I can't think of anything better than the posts you already have, but keep watching and trying...that's the key to sucess.
We are here for you both and may you stay strong in this time of need. I can't imagine what you both are feeling right now, you have been through so much together...but I wish you both the best and hope you find that which you need.
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I feel the same about morphine. My pain is simply not as bad. But pain is pain. I read a quote that went something like this... pain is like being backed in a corner by angy biting dogs. My close freind in Florida got her pain pump after four years. We have here in the USA whats called states rights. It means a state can make law and they are left alone unless the federal goverment steps in. Why do I tell you this. Well several states including New Mexico where approved the use of medical cannabus. There are ways to take it other than smoking it. Reseach the oral form you eat or the pill that yooou take. My nuerologist is getting me the paperwork to get started. What is my point. I think this may be alot kinder to your mom than that nasty morphine. What are yoou laws in the UK. Peace
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Honey, I am so very sorry about what is going on with your Mum and I wish that I had some great words of wisdom to change her mind, but I don't. Like some other poster mention, maybe it is because is not only the fact of getting the pain pump, but after the pump is installed is all about getting a Doctor to fill the pump with the medication every month or every 3 months..... so maybe that is why the Doc is saying no, it might be because there might be a problem with someone in your town able to refill the pump.
You need to find out the reason why they are denying your mother the pump at this time, there must be a reason. I also agree that your Mum should not cut the morphine cold turkey. That is not only going to give her withdrawal symptoms, but it also can scalate her pain very badly to the point that she will end up at the A & E. I hope that this helps..... If you also want to get your mum help for her depression, I know that the Samaritans in the UK are a phone call away. Their number in the UK is 0845790 90 90. I am not in the UK, but know quite a bit about your system of care due to a good friend of mine that is also in chronic pain and lives over there. Take care and keep us posted.
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I have lost count of the number of times that I have given up because of the pain. It destroys the soul and spirit to be in constant pain. It is even recognized by the Catholic church as a reason for not holding a person's soul back from arriving in heaven.
It takes a great deal of strength and courage to get out of bed everyday and face pain that you know too well. Try to imagine remembering exactly what the flu feels like, wouldn't you be terrified to have the flu again, would you do everything in your power to avoid getting the flu again? Hopefully, this is a temporary set back. If letting your mom have some control right now gives her a feeling of empowerment that might be what she needs for a little while until she feels better emotionally. Try just being with her as much as possible. If you can be patient right now, she might listen more to your advice later. Then you can try to get her to get the testing done. If she does not have a pain contract, you might call the doctor doing the procedure and explain the situation. He might have some way to help you help your mom. You will both be in my prayers, C
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