Chronic Pain Support Group

Only tell him what you want him to hear and as your relationshp gets better then tell him.
Or you can be up front and tell him everything, it's really up to you.
A good doctor is hard to get these days.
Sometimes when i see a new doctor i dont him everything until he ask or i tell him at later date.
My pain doctor is great and i normally tell her things that i dont my own doctor.I wait until she gets to that part.
It's really up to you.
Good luck.

What exactly was the miscommunication, if you don't mind me asking? I wouldn't mention the methadone clinic, but the doctor will know if you leave a page off, i'm guessing, because they are numbered. Try to be as honest as you can. If you have documentation of the cause of your pain, give that to him/her first. Explain what you are going through pain wise and how hard things have been for you without medical intervention with the pain. DON'T ASK FOR MEDS. This is always a red flag. If the doctor asks you what has worked then be honest, but don't offer any suggestions on this. Doctors tend to stick together, so don't diss the old doctor. Just say that you weren't happy with the course of treatment and was really looking for someone more informed about your particular injury, illness,et al.

Good luck and please remain calm and try not to be too desperate about the meds. I know this is hard because you really need relief from the pain, but any effort to look uninterested in medication will look good for you.

You will be in my prayers. I know how hard finding a good doctor is and I will be keeping my fingers crossed for you.

I AGREE WITH NOT TELLING THE DOC ANYTHING HE/SHE DOES NOT NEED TO KNOW ABOUT YOUR CURRENT SITUATION AND/OR YOUR PAST AS IT RELATES TO YOUR PAIN AND MEDICATIONS. (OPIOID/NARCOTIC)
I HAVE HAD THE SAME TYPES OF EXPERIENCES WITH "MANY" DOCTORS AND OTHER MEDICAL STAFF. RIGHT NOW OUR WORLD/COUNTRY/MEDICAL SYSTEM, IS GOING THROUGH A REALLY BIG MESS WITH REGARDS TO CHRONIC PAIN PATIENTS AND THE MEDICATIONS MOST APPROPRIATE FOR TREATMENT OF OUR CONDITION. THERE ARE SO MANY REASONS, EXCUSES, POLITICAL/LEGAL, PERSONAL EDUCATION AND EXPERIENCE OF MEDICAL PROFESSIONALS, GENERAL PUBLIC, LEGAL PROFESSIONALS, WITH SO MUCH INACCURATE INFORMATION ABOUT CHRONIC PAIN CONDITION, CHRONIC PAIN PATIENTS.
MUCH OF THE INACCURATE INFORMATION IS MUCH MORE THAN THAT EVEN...
ACTUAL OVERT DISREGARD FOR PROOVEN SCIENTIFIC
INFORMATION AND DOCUMENTATION IS NOT UNCOMMON IN HOSPITALS, PRIVATE PRACTICES, AND PAIN MANAGEMENT CLINICS.

MY OPINION IS THAT THE WHOLE THING IS A HORRIFIC NIGHTMARE FOR ALMOST EVERYONE INVOLVED IN THE EXPERIENCE FROM PATIENTS, TO FAMILY, MEDICAL PROFESSIONALS AND EVEN SOME IN THE LEGAL AND POLITICAL ARENA.

WE THE PATIENTS ARE THE ONES WITH THE WORST OF THE CONSEQUENCES AND THEN THE GOOD DOCS WHO ARE ATTEMPTING TO WHAT'S MEDICALLY CORRECT IN THEIR TREATMENT OF OUR CONDITIONS ARE THE NEXT WITH THE MOST TO LOSE AND MANY OF THEM ARE LOSING A LOT.

I AM GOING TO POST MY REPLIES EVEY SO OFTEN EVEN THOUGH I AM NOT FINISHED YET BECAUSE MY COMPOSED WRITING GETS LOST EVERYTIME I HAVE A LOT TO SAY, OR TAKE A SHORT BREAK FROM MY COMPUTER AND I DO NOT HAVE THE PATIENTS OR THE STAMINA TO RE-WRITE IT ALL. SO, PLEASE BEAR WITH ME AS I WRITE THIS IN MANY REPLIES. IT IS SUCH AN IMPORTANT TOPIC THAT I WISH TO BE CLEAR AND THOUROUGH IN MY "OPINION" AND REPLY.

I WOULD SUGGEST GETTING REAL LEGAL ADVICE CONCERNING YOUR QUESTION REGARDING THE TAKING OUT OF THE MISCOMMUNICATION WITH THE PREVIOUS DOC. THAT MAY GET YOU INTO SOME MORE OF THE SAME KIND OF TROUBLE AND CONSEQUENCES.

IT'S TOO BAD THERE IS NO WAY TO CLEAR UP THE MISCOMMUNICATION?? I DO UNDERSTAND HOW THAT SITUATION CAN GET OUT OF CONTROL, ESPECIALLY WITH THE DEFENSIVENESS OF MANY DOCS THESE DAYS. THEY STEREOTYPE US WITH NO THOUGHT TO THE CONSEQUENCES WE PAY IF THEY ARE WRONG IN THEIR DIAGNOSIS OR OPINION OF THE "FACTS " AS THEY SEE THEM. I HAVE BEEN "RED FLAGGED" IN A SIMILAR SITUATION AND STILL, 5 YR.S LATER, AM PAYING FOR HIS COMPLETE IRRESPONSIBILE ACTIONS.

THE ADVICE ABOUT "NOT ASKING" FOR MEDS IS ONE I AM NOT IN COMPLETE AGREEMENT WITH, ALTHOUGH THE TYPICAL REACTION FROM MOST DOCS IS EXACTLY WHAT WAS STATED.
POSSIBLY YOU COULD BE VERY CLEAR ABOUT YOUR EXPERIENCE WITH THE PAIN, AND HOW IT LIMITS YOUR ABILITY TO LIVE A LIFE WITH ANY NORMALCY OR QUALITY OF EXPERIENCES.
EXAMPLE:
SLEEP IS DIFFICULT AT BEST 2 HR.S AT A TIME.
CANNOT TAKE CARE OF PERSONAL LIFE CHORES ALONE, IE. SHOPPING, COOKING, CLEANING, WORK OUTSIDE OR IN THE HOME, LIFTING THINGS, ABILITY TO TOLERATE DRIVING OR SITTING AS PASSENGER IN CAR, AMOUNT OF ACTIVITIES ASIDE FROM 'THE WORK OF LIVING', LIKE NO MOVIES AT THEATER( CANNOT SIT THAT LONG), FAMILY ACTIVITIES LIMITED AND HOW THEY ARE LIMITED AND WHY THEEY ARE LIMITED OR NONEXISTENT.
THEY NEED VERY SPECIFIC EXAMPLES OF WHAT THE PAIN FEELS LIKE AND WHAT HAPPENS WITH THE PAIN DURING SPECIFIC ACTIVITIES. LIKE I CANNOT WASH MY FLOORS ON MY HANDS AND KNEES NOR WITH A MOP BECAUSE OF THE STRAIN PUT ON MY LOWER BACK. IF I ATTEMPT TO DO IT I EXPERIENCE TIGHTNESS AND MUSCLE SPASAMS THAT ARE AN INTOLERABLE DISCOMFORT.
WHEN I ATTEMPT TO SLEEP I MUST CHANGE POSITIONS BECAUSE OF HOT, SHARP, RADIAIATING PAINS IN BACK TO BUMM, INTO HIPPS, DOWN LEGS, TO FEET AND TOES AND WHATEVER SIDE I AM LAYING ON THE OTHER OR BOTH SIDES FROM LOWER BACK TO TOES GOES NUMB AFTER A TIME OF DEEP SHARP CUTTING FEELING OF PAIN.

BENDING, WALKING, CLIMBING STAIRS,HAVING TO CUT DOWN THE TIME YOU SPEND DOING ONE THING SO THST YOU CAN DO ANOTHER BECAUSE THE PAIN BECOMES UNBEARABLE IF YOU ATTEMPT TO DO BOTH OR ALL..
MANY PEOPLE DO NOT UNDERSTAND HOW IMPORTANT DOCUMENTING SPECIFICS IN A DAILY LOURNAL IS. I HATE IT.. I HAVE PAID THE PRICE OF
NOT HAVING THE INFORMATION TO SHOW THEM.

MANY PEOPLE ARE DENIED THEIR 1ST AND 2ND ATTEMPTS AT GETTING THEIR DISABILITY FROM STATE OR SOCIAL SECURITY BECAUSE OF NOT EXPRESSING EXPLICITLY THE SPECIFICS AND DETAILS OF THEIR PHYSICAL PAINS AND HOW LIMITED LIFE IS COMPARED TO WHAT USED TO BE NORMAL FOR THEM.
ALSO THE EMOTIONAL REACTIONS THE BODY HAS TO PAIN ARE IMPORTANT. SORT OF LIKE THE STRESS AND ANXIETY, POSSIBLY THE CRYING AND INSECURITY FEELINGS BECAUSE OF THE BAD DOC AND AFRAID OF THE NEW DOC BECAUSE WE NEED OUR PAIN DIMINISHED AND THEY HAVE ALL THE CONTROL.
THERE ARE SO MANY ASPECTS TO THE DIAGNOSIS OF CHRONIC PAIN SYNDROM THAT IT'S JUST NOT FUNNY.

IT TAKES MOST OF MY ENERGY EACH DAY JUST TO TOLEATE THE PAIN I EXPERIENCE WITH NO ACTIVITIES BECAUSE I HAVE BEEN UNDER MEDICATED FOR THE WHOLE 6 YEARS OF MY EXPERIENCE.
I SO UNDERSTAND WHAT YOU'RE GOING THROUGH.
I MAY REPLY AGAIN BUT I MUST TAKE A SERIOUS BREAK NOW. MY BACK IS ANGRY WITH ME AND I HAVEN'T HAD BUT A FEW HOURS SLEEP IN THE PAST 2 DAYS AND THE SAME THING HAPPENED THE 2 DAYS PRIOR TO THAT.
PLEASE BE CAREFULL... MAYBE CALL ABOUT ONE OF THOSE FREE 30 MINUTE LAWYERS. TRY TO THINK LIKE THE DOCTOR WILL THINK RATHER THAN FROM YOUR PERSPECTIVE, SOMETIMES THAT HELPS ME. ALSO TAKING SOMEONE REPUTABLE WITH YOU TO ALL APPOINTMENTS WHO KNOWS 1ST HAND WHAT YOU EXPERIENCE DAILY. MY SPOUSE IS BEST. EVEN THOUGH MY KIDS ARE OLDER THEY STILL DON'T REALLY LISTEN TO THEM. I TOOK MY WHOLE FAMILY IN ONE AND THAT WORKED WELL, BUT IT WAS A REAL GOOD DOC ALL READY SO ... YEAH.

LOVE YOU SO MUCH.. KEEP UR CHIN UP.. SO U WILL B LOOKING TOWARD GOD, AND PRAY IF THATS SOMETHING U DO. THEN LISTEN FOR THE ANSWERS. IF YOU DO BELIEVE IN GOD... REMEMBER HE WILL DO FOR US WHAT WE CANNOT DO FOR OURSELVES SO.... LET HIM DO IT!!!
WILL WRITE MORE AND CHECK IN ON YOU LATER SWEETIE.
TERRIEANN
RALOP

Absolutely do not remove that page, they will know and it will make you look worse. i searched for three years for a doc . ..i know its hard . be as honest as possible, tell him calmly there are notes in your chart you dont agree with and tell him why...NO EMOTION just state the facts and what you disagree with and why. from there you trust him and ask him to trust you , make sure you speak to him calmly and stick to the point , promote a team approach to your pain management , working together , acknowledge the position docs are in with prescribing strong meds , and as the others have said dont ask for the meds specifically. Next you might want to contact an attorney to have your medical records edited , or at the very least make your objection to the record a Part of the record. I had a close friend go through this ....stay calm and dont give up , there are understanding docs out there...even with a flag on record.....

I have finally found a great doctor that understands pain. I had to go outside my insurance but he is not too expensive and he is not a quack. i checked him out thouroughly. Thank you all so much for your help! I will take your advice if it comes back to this in the future. I will try and make sure that it doesn't!!! ((((HUGS)))) to you all. Kitties2

HI Kitties!
Im so happy to hear that you have found a great doc!

If you have time could you please do me a favor and go to "your own best advcoate" group and write in the topic.. "GOOD DOCTORS LIST CA and then under that write down your doc so others can see if they live in California...

That will help others know this person... let me know if you want me to do it all I need is the name. THANKS!!!!

Will do. I'll do it right now if you don't mind doing the rest. I'm in a big hurry today. He is in California. I'll go to the group now. BTW Anyone that lives in Soutern California and needs his name please go there too.