What is Chronic Lymphocytic Leukemia CLL
Chronic lymphocytic leukemia (or "chronic lymphoid leukemia") CLL, is a cancer in which too many lymphocytes (a type of white blood cells) are produced. CLL is the most-diagnosed f...
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Hi! I was diagnosed with CLL in May 2008 from a CBC during a routine physical (complete surprise!). Currently, I am at a Stage 0 with "watchful waiting". I am a mother of twins with a wonderfully supportive husband of 11 years with no time to let this bump in the road control me or slow me down. I visit my oncologist every 6 months for CBC. Last one was 10/2008 and WBC was 16.0 which was lower than the 21.1 & 17.5 in 6/2008. Am so glad I found the online CLL support group! Have read all of the postings and have realized that I am not alone in this challenge. Have a great day!
Posted on 10/27/08, 09:10 am |
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I agree with you Debstorm about finding comfort in other's posting re: CLL. There is not a lot of support out there except for what we find online. That God for the internet! It took me almost a full year to digest and really learn about CLL. Most of what I learned was on my own online. Good luck to you and congrats on quitting the job you hated! 
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well my last test was better than my first..i was so shocked i just about fell off the chair..i was bracing myself for bad news having just found more lymph nodes up everwhere..WBC 9.....in normal range....clearly strange but who am I to argue..lymphocytes just out of range....any sydney people reading this?....love to get to know you a bit more
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congrats lisa66! i know you must be relieved compared to what you were feeling. i saw my onc. last thursday and all of my #'s are exactly the same with my wbc at 18.4 and the others did not budge either. how often do you visit your onc.? i go every 6 months and i have learned to not freak out before I go..something i thought i would never be able to do!
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I am new to this group but have been a long time lurker on the acor list (CLL@LISTSERV.ACOR.ORG). While each person is different, I think you can take comfort from my partner's case. He was diagnosed in 1991 and he has only had one round of treatment at UCSD with Dr. Kipps (Rituxan + hi dose prednisone) in 2006. We would not have found Dr. Kipps without the listserv. Over time you get used to the WBC going up and down although it is nerve-wracking when the trend is up. We wish you well on your journey!
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