What is Chronic Lymphocytic Leukemia CLL
Chronic lymphocytic leukemia (or "chronic lymphoid leukemia") CLL, is a cancer in which too many lymphocytes (a type of white blood cells) are produced. CLL is the most-diagnosed f...
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Doctors are not telling me
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I have been told bu NP that I need
treatment as soon as I can get there THen I was told you don't need to then iwent to afficliated hospital and they were concerned so ordered tests and said previous tests form other doctor was uncompleted- the two places are affiliated I am so frustrated.Has anyone else gone through this? Posted on 02/02/09, 06:02 pm |
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I am a nurse dx with cll (b cell0 about 1.5 yrs ago.If you are asymptomatic, (if you have no pain) then you need no treatment with this disease. They do not treat the numbers. I repeat no pain or problems not treatment 
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THanks - I do have pain
I am getting tests together as some are still not complete
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I have reveiwed tests- one says I am anemic and need iron pill
and platelts are out of range-glucgose out of range and Tibc out of range and other consultationg repeated the same reult that platelets are crtically high but doctors say I am fine- many I should see pcp again with tests- i have thyroid diverticulitetes, high cholesterol and diabetes, disc disease and Ibs , gerd already , HOw can you be fine if same tests are abnormally high or critical
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Perhaps when the consultants say you are fine, perhaps they mean your disease progress is stable. CLL is a chronic disease. You can have variations in your counts, but if they remain within a certain range, the doctors say you are o.k.
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I am switching PCP , all the specialists
will be in the same area office and also a hospital I trust I switche PCP and now getting records send over NO one says anything straight for m my office regarding the recent hematologist- I have seem 4 hematology- so happy to be switching
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I have CLL and am currently on my 5th of 6 treatment cycles of FCR. The decision to treat or to "watch and wait" is up the the hematologist/oncologist. You hopefully are being treated by a doctor who is both, and who has experience treating CLL. I do know that they need a "blood flow cytometry" test, a lymph node biopsy, a ct scan and a bone marrow biopsy to see what is really going on with your condition. There are different types of CLL so there is no one answer for everyone.
Good luck and God bless.
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I think you are right wiferenal
Blood tests were ongong and there were positive reslults- stable now one oncologsit said it is benign Iam changing PCP and other doctors and it will be for the best I have sciatia,disc disease,diabetes,hypothyroid,high cholestoral IBS,diverticulits, slight obstruciton in esphagus and cyst near heart
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