What is Chronic Fatigue Syndrome

Chronic fatigue syndrome (CFS), also known as myalgic encephalomyelitis (ME), post-viral fatigue syndrome (PVFS) and various other names, is a syndrome (or group of syndromes) of u...

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Discussion:
big pharma takes notice (XMRV news)
Watch this 
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And I say, it's about time!

http://www.rgj.com/article/2009103...

Quoted text on page 3

"The world’s largest pharmaceutical companies have been calling the [WPI] asking if they can test their lines of a drug now used to treat patients with HIV, another retrovirus, to see if their anti-viral drugs can be adapted to treat Chronic Fatigue Syndrome patients.
“They want us to send them the (XMRV) retrovirus so they can screen huge libraries of compounds and see what they have that could work,” Mikovits said. “They already have drugs to treat HIV, so they could redesign a compound for the XMRV virus. Since they already have FDA approval, they could get something out to people fast.”

Among the drug companies lining up are LabCorp and Quest, two of the largest diagnostic companies in the world, Mikovits said.

The drug companies will pay for the Reno institute’s cell lines, the established cultures that will grow the XMRV retrovirus so they can test their antiviral drugs on them, she said. "
Posted on 11/02/09, 09:11 pm
17 Replies | Most Recent Add Your Reply
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Reply #11 - 11/14/09  10:10pm
" I've never read anywhere that CFS is contracted through blood and body fluids. Were you talking about HIV? CFS isn't contagious although there have been cases of spouses getting it. It may be a coincidence or they were both exposed to the same trigger.

Is the drug Ampligen? "
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Reply #12 - 11/15/09  11:38am
" CFS is contagious. Like most other diseases, not everybody gets it. "
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Reply #13 - 11/15/09  2:24pm
" Unduki you need to do your research. CFS is not contagious. And it is not like "most other diseases". Go to CFIDS.org and do a search on "contagious". "
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Reply #14 - 11/15/09  2:26pm
" What does WPI stand for? "
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Reply #15 - 11/15/09  4:25pm
" At the very least some subtypes(if these can really be called subtypes anymore) are most likely contagious. The WPI(Whittemore Peterson Institute) says it is 'quite likely'. There was a paper in the Annals of Internal Medicine in 1992 about the Incline Village outbreak in the mid-eighties that concluded CFS was likely to be contagious. If the new XMRV findings pan out, it would be basically certain CFS is contagious.

The CFIDS Association has long gotten a bad rap in the patient community for downplaying contagion.

VickiB, have you ever read Osler's Web by Hillary Johnson? You really might like it. "
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Reply #16 - 11/15/09  4:34pm
" Whoops, WPI doesn't say 'quite likely', but rather 'quite possibly'. It's not the same, but they can only say so much without 100% proof.
http://www.wpinstitute.org/patient... "
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Reply #17 - 11/15/09  4:55pm
" @Vicky, we're referring to research suggesting that CFS might be cause by a retrovirus called XMRV. There was a paper published in a journal called "Science" last month, in which researches found active infection in the majority of CFS patients they studied. Here's the NIH press release:

http://www.nih.gov/news/health/oct...

Because infection WAS found in a small percentage of healthy controls, researchers speculate that, if XMRV does cause CFS symptoms, genetics may play a part, as might triggers like stress and infection.

Since XMRV is a retrovirus (like HIV) the assumption is that transmission occurs through blood and bodily fluids.

However, much more research needs to be conducted in order to confirm XMRV's role, if any, in CFS and how it is transmitted. "

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