What is Chronic Fatigue Syndrome
Chronic fatigue syndrome (CFS), also known as myalgic encephalomyelitis (ME), post-viral fatigue syndrome (PVFS) and various other names, is a syndrome (or group of syndromes) of u...
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big pharma takes notice (XMRV news)
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And I say, it's about time!
http://www.rgj.com/article/2009103... Quoted text on page 3 "The world’s largest pharmaceutical companies have been calling the [WPI] asking if they can test their lines of a drug now used to treat patients with HIV, another retrovirus, to see if their anti-viral drugs can be adapted to treat Chronic Fatigue Syndrome patients. “They want us to send them the (XMRV) retrovirus so they can screen huge libraries of compounds and see what they have that could work,” Mikovits said. “They already have drugs to treat HIV, so they could redesign a compound for the XMRV virus. Since they already have FDA approval, they could get something out to people fast.” Among the drug companies lining up are LabCorp and Quest, two of the largest diagnostic companies in the world, Mikovits said. The drug companies will pay for the Reno institute’s cell lines, the established cultures that will grow the XMRV retrovirus so they can test their antiviral drugs on them, she said. " Posted on 11/02/09, 09:11 pm |
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Most of my bloodwork is done at Quest labs. 
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Yeah, that's along the lines of what she said they would do. Nice to see things moving along.
Thanks for the update.
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Thank You for the update. It's nice to know things are moving even if we know money is what is motivating the drug companies at least they are doing there part to get things moving.
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You know....I'm not so sure about this being a retro-virus. Wouldn't our spouses contract it from us if that's what it was? My husband is fine. I've not read anything from anyone else where they have CFS and their spouses have gotten it also. I heard you contract it via blood and bodily fluids, yet spouses don't seem to be affected. That seems strange to me. I was reading something a while back about someone found a mutated gene, but am unable to remember where I saw the article. I'm just very skeptical at this point.
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Thanks Robin for the update.
If they do find a drug that works, and it makes a big improvement in patients' lives...wow, wouldn't that be something? I'm afraid to look ahead that far, afraid to hope I guess. Wait and see, that's what.
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This is fabulous news in that things are moving!
WPI is hearing from not only patients but doctors and labs and pharma companies. Our illness has finally reached the international forum in a big way and I don't know about you, but I feel validated. I'm so happy I could cry with relief. It may take 1 year or 5 years for some standard testing or treatment, but at least it's moving towards progress. CFS and FM sufferers have been treated with neglect, abuse and cruelty by the medical profession. It's time for a change............
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i have heard a few stories of spouses contracting the disease from the other spouse.
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Good to know! Thanks for the update!
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@kweebs, it does seem premature, however...if a drug is new, it can take years for it to go through clinical testing for safety and efficacy. If it's a drug already on the market, like an anti-retroviral for HIV, they still need to do a phase III test to determine if it works against XMRV -- that takes time too. Nancy Klimas said at the CFSAC meeting that there really wasn't even the infrastructure to conduct a phase III trial! Also consider that efficacy testing can help show whether or not XMRV has a causal relationship with CFS. If a drug reduces active infection, it would be very telling if it correlates with symptom severity.
So, the fact that the drug companies are starting NOW, even if it seems to soon, is a good thing. People chafe at big pharma for looking at patients as investment opportunities but sometimes that can be a good thing. :-)
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