What is Chronic Fatigue Syndrome
Chronic fatigue syndrome (CFS), also known as myalgic encephalomyelitis (ME), post-viral fatigue syndrome (PVFS) and various other names, is a syndrome (or group of syndromes) of u...
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Living alone and CFS
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For the last two years I have been living alone. I have roommates, but we hardly ever see each other. Live in basically a collage dormitory. I am a night person so when I go out at night, everyone is asleep.
I have tried dating, but detest the pretentiousness of it all and the meat market feeling is just a big turn-off. I cannot have a pet where I live either. So night after night I sit here playing a game on my XBOX 360, surfing the net, playing guitar, reading, and wishing that there were more to life than this. I want to volunteer to help others, but cannot even achieve a stable sleep pattern so I can commit to the endeavor. I just feel stuck in perpetual loneliness. When I am up during the day and am feeling well enough to go out, I always see others enjoying life, and I desperately want to enjoy life as they do... but I cannot. In my solitude I feel myself becoming antisocial for too many reasons to divulge here, but all based out of fear. Insane right. Want to be around people, but at the same time don't want to. It is just taxing on me to be social for very long. Makes the holidays get together s tough. Anyone feel like this... isolated, invisible, alone, and helpless to do anything about it? Posted on 11/02/09, 08:11 am |
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Hi,
I relate so much to you, no one around me. I watched your videos on You-Tube. I have the same sleeping problem, sleeping at daylight, waking up all night, & nothing worked to fix it. Regarding the walking, you have encouraged me to try & start a mild walking program. i'm glad that we're all not alone in what we're facing. Good luck & best wishes 
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I also live alone. Before I got sick I was Ms social. A job in public relations. Traveled all the time. Everyone came to my house to party.
Now I'm a completely different person. You couldn't drag me out of the house. I like it here and enjoy the solitude. It took a while to become comfortable alone. But I really enjoy being able to stay up and not bother anyone. I clean the house when I feel like it. I don't have anyone telling me I need to get out more. I love to read and found a hobby that I enjoy. I do so much research online that I feel like I'm homeschooling to become a doctor. And I spend tons of time fighting SSD and LTD to keep the income coming in. I won't let myself get sad over the Holiday. I just make the best of it and get all my enjoyment from watching kids during this time. If the Holiday's are hard on you, just stick around here. I have a feeling we will all be here with our friends.
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Hi all,
I have also done what "youdontlooksick" did. I isolated myself from abusers & end up alone, so i started enjoying my solitude without anyone nagging me, stressing & bothering me. Also i have the time to learn many hobbies i like & enjoy. Things would work fine for some days, but then i would again become down for being alone. Seriously, the feeling that i don't mean anything to anyone, ( i mean nothing to all of them), & that nobody cares or will be affected at least emotionally even if i died, that feeling is torchering & killing me, it is ripping me apart. Does anyone else feels like that?
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survivorALL
Luckily I tolerate walking fairly well. Not to say it is not without some level of pain and fatigue, but tolerate it well enough. But make me clean the toilet or bathtub... and I am totaled for the entire day. It is hard to deal with family not really caring how I am doing. But I think the reality is that there is really nothing my family can do for me. They can show compassion, but as the years go on, and my complaints continue unresolved... they just kind of tune you out. Can't say I blame them too much though. It is tough to watch someone suffer and there is nothing that you can do about it. To all, thanks for your input.
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