What is Chronic Fatigue Syndrome
Chronic fatigue syndrome (CFS), also known as myalgic encephalomyelitis (ME), post-viral fatigue syndrome (PVFS) and various other names, is a syndrome (or group of syndromes) of u...
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How many of you keep some sort of journal?
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I keep a journal on MIcrosoft Word to help sort out my feelings and symptoms. I protect it with a password so no one will find it. I tried keeping a written diary but I found that that was terribly difficult to do with my fatigue so I switched to a computer journal and now I'm still very tired and don't want to do it but I can and I can write volumes of information since typing is so much better for conserving energy than writing. I'd love to write stories but I don't have that physical and or cognitive ability right now so I'll stick to journals. (And Dream Journals if anyone has ever made of these?)
Posted on 07/04/09, 10:07 pm |
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I love my medhelp tracker and you can personalize your journal so only you or even just your friends can read it. Check mine out.
http://www.medhelp.org/user_tracke... It even has places where you can talk to friends, keep track of your meds... http://www.medhelp.org/personal_pa... Can you tell I am a Medhelp.com junkie? 
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I used to monitor my symptoms and how I felt only what I found was that they were everchanging with CFS. Plus some symptoms would come and go, some linger on, and others I would have daily. Like almost everyday I have a headache, muscle and joint pain, and an upset tummy and or nausea.
I couldnt find any significant pattern with any of my symptoms in general.
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I'm not finding any correlations either but having that medhelp tracker allows me to bring my day to day stuff to my doctor, my lawyer AND I'll have when I have my SSD hearing. I used to journal in "word" but this is much easier to read and much more consistent/reliable (one has the same symptom options each day plus room for a journal.)
Mine is totally private and I don't use any of the other medhelp features, but I LOVE this "tracker"!
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I only keep my journal on DS...and lately I haven't posted much.
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Thanks for the medhelp link--I'm going to try that tracker.
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I find my journal has taught me a lot about my illness. I have a regular routine with it, and if I'm tired I don't write much. It's great for keeping track of things, and reviewing to see if I am going up or down hill.
I just use a notebook from the office supply store, not the nine by twelve, but the next size down. I have stacks of them now, and it's instructive to go back a year or two to see how I was doing. I write all sorts of things in it, whatever I want.
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