Chronic Fatigue Syndrome Support Group

Two things to remember:

1 - The doctor works for you.

2 - It's your body - you only have one, but there are other doctors.

Good luck with this ordeal.

You are absolutely right. I'm on it!!!! (Looking for new doctors).

There are more ME/CFS illiterate Doctors than there could ever be diffucult patients. Dont let them ever blame you.

Very common - "Even started crying a little when i was talking about how frustrating it has been to be having the same symptoms over and over again" - why because our Neuro Endocrine and Immune systems are being ravaged and we are going through hell - hence we cry.

I wouldn't do physical therapy if I were you. Is your connective tissue disease Lupus or Sjogrens Syndrome?

I think the therapy is going to cause awful rebound symptoms of terrible pain = I agree with you.

I dont knowifyou can get up to Munster just outside Chicago but Co-Cure.org has referals and reomendations to Dr.Dreyfus, Reumatology
INDIANA, USA ME/CFS & FIBROMYALGIA GOOD DOCTOR LIST

Munster, IN
Dr.Dreyfus, Reumatology
761 45th Street
Munster, IN
Tel: (219) 922-3002
(FMS)

Cheers

Al'

I would have to find someone locally to see for the Rheumatology issues, since i can only drive short distances. I thought that if doctors get to know you, they would understand that you are not exaggerating about your symptoms. They don't know how hard I cried one day when my knee pain flared up. In fact, I called one of my brothers and tearfully told him how much pain I was in. If any of these doctors were sick everyday, exhausted, taking tons of meds and supplements, lonely, misunderstood by family and friends (one of my nephews has blocked my phone calls again), they would think twice about brushing off our symptoms. I'm taking another antibiotic for the sinusitis that didn't clear up, and its causing me to run to the bathroom throughout the day. Sorry to tell y'all that....its just aggravating. It's a beautiful sunny day here in my city, and all i want to do is spend a little time with my grown daughter. Friends, your comments have helped me feel not so alone. I could cry when I think that there ARE people who will take the effort to be helpful. God Bless You all!!!

I've gone through a process of disillusionment where I gradually lost my belief that doctors place the welfare of their patients high up on the list of their priorities.

I didn't want to believe it, but there's only theory that fits all the facts in my experiences in medical care facilities....their first priority is maximizing profits.

I'm sure there are more ethical doctors and clinics around, but so far I haven't located them.

If you're not getting the medical care that you paid for, move on. That's your right and your responsibility to yourself. Always remember that the person in charge of your medical care is you.

You and others have helped me feel more empowered and in charge. This thing, CFIDS, works on my self-esteem, dignity, self-worth - well, I feel like fighting back now. It's taken too much time away from me. And maybe God has been waiting on ME to say, I'm not gonna take being misunderstood, not believed, and all that other stuff people who don't feel what we feel try to ram down our throats. Thanks!

Get empowered!! You need to be your own advocate with the medical profession these days. CFS/ME patients are used to being ignored, mocked, blamed, called lazy and stupid and basically dehumanized in the medical world. They don't believe a word we say, and they find us to be "difficult" patients.

Balogna! I found a good CFS doctor. Many of us have. You can do this. Don't take abuse from illiterate doctors, lulu!! OK? Find a good one.

Don't sell yourself short. You are suffering, your doctor's aren't listening to you...move on. YOU are worth it.

GO GIRL!

Thank you so much. I feel like i have a real cheering section here. You guys are awesome. You're reaching out to me, you believe me, you make me want to fight back. I was losing that desire to fight, and that's the truth. But i need to fight for me, and my 26 year old daughter. She was diagnosed with Autism, and i'm her legal guardian. She lives nearby in a lovely apartment with a roommate with Autism. I promise i will keep looking until i find some doctors i'm completely satisfied with. Bless you all!!!