Chronic Fatigue Syndrome Support Group

From what you say, I would definitely be interested to hear how your MRI goes in January. The fact there are some lesions (I think white matter means lesions right?) and you report your vision deterioration would merit further investigation.

I think that you are correct in citing Adrenal problems, which is one reason that I would recommend getting your cortisol levels checked. You might also want to get your DHEA level checked also. There is a good book, which you may already know about: http://www.adrenalfatigue.org/adre... Regardless, it seems that many people who have CFS (and other illnesses) seem to have Adrenal Fatigue as a component either as part of their condition or in addition to it. The amount of stress you are under, it is not surprising you feel so unwell! I think most of us can identify with what you have said in some way... the stress we undergo these days does not really allow our bodies to heal properly.

Keep in touch!

You may also want to test for HIV and HBV.

These are unlikely but, as we all know, you have to rule out everything else before you get a "true" diagnosis.

Jeb

The gray matter in your brain is the body of the neural cell, the part that you think with. The white matter of your brain is the axioms, sort of the tail end of the brain cell. This is used for communication with other cells (that is if I remember my neuro anatomy correctly) The nodules is the actual damage. Nerological damage from MS can also show up along the optic nerve, but as I wasn't having vision issues when they did the MRI they didn't look at the optic nerve. That may change when I see her in January (or maybe sooner).

Jeb I've been in a monogamous relationship for 20 yrs. I better not have HIV or DH is in serious trouble lol! But I will add that to my list of things to discuss with my Dr. on Monday.

You guys are fabulous. I really appreciate all the info.

Boy it is funny to read all the replies of test. I have had some multiple times. It is so crazy sometimes. I feel like I should donate a pint and let them take what they need when they think of some new test. lol. The only thing different that my doctor has found consistently is a histamine in my stomach (have no clue what he is talking about) but thinks it is related to a virus and that histamine is sending out signals that I am allergic to myself....sounded too stupid to me. But he is doing research on it now to see what he might offer me. I am blessed. My doctor won't stop until we either find a cure or find a way to make my life more managable. And yes, I printed out all the great articles that people post on here. He likes that I am always trying to stay one step ahead. He said it makes him work harder to keep up! Blessings.

How about Lupus or a vitamin D deficiancy? I was misdiagnosed for years but I ended up having Late Stage Lymes. I know how frustrating it is to have to go through that. I had gotten some very scary diagnosis and it sucks to be in the doctor after doctor flow. I really hope that you can find the source so that your mind can be put at ease. Good luck.