Chronic Fatigue Syndrome Support Group

Im sorry that you feel this way but you are not alone. Most days are a battle for me to get up and moving + living in fatigue and pain.
Are there any support groups in your area? Maybe this could help meeting people with the same condition. Sometimes I go to a CFS/Fibro group that meets once a month and it helps to share and talk about your symptoms and meet other people.

take care
Harry

It's hard to cope when you feel no one truly understands what you are dealing with on a daily basis. I have been to support groups before and sometimes they can be really good, but sometimes they are not that great. It really depends on who is organising it and what the aim of the group is... sometimes you can get a bunch of negative people, so ideally a group needs someone to kinda keep the group focus positive.

I have gained a lot from people here - I feel that people do understand what I am going through because they are going through it or similar. I think that I have begun to realise that I don't necessarily need people to understand, as much as I need people to respect what I am going through. If people around me, and who I come into contact with in life, are able to respect how my illness affects me and the efforts I make to lead as normal a life as possible, then I am happy with that.

I agree with Harry about trying to find a support group, but don't forget about us on here!

Vicky

What about a pet? Hands down my cat is my favorite freind. Not a single one of my freinds truly understands but in a way its good for me because our time is spent distracting me (the best as possible) away from my health siutation. Regardless of having health issues the most important freinds are the ones who accept you for who you are, illness and all.

Oh my gosh! I so relate to the pet thing. I just got a rescue dog and he loves me so unconditionally! Even if I don't feel good or feel like getting up. Because he is a few yrs old he isn't all over the place and lays with me while I am down. He doesn't feel sorry for me or tell me I am lazy. Lol. It's so nice!
Yes, someday I make it to the kitchen and then right back to bed. It's okay to feel that way. And it is okay to not get up when you don't feel good. I used to beat myself up for not getting things done or helping my kids more. But I realize it is not something I can control. It is okay to just have a bad day sometimes. Your blessed because your still alive and your still loved. Trust me I am having a good week. Next week I will be the one needing support again because I just can't seem to function. I am here if you need to talk.

Hi jra

I know how you feel I'm experiencing the same lonliness and isolation just like yourself and I can remenber when I found it so difficult to get out of bed most days, but you will start to find that the fatigue will become less and that your strength will start to slowly come back. I did alot of meditating, it might help for you.

Take care
CassMM

I know just what you mean, I get very lonely and it is so hard to get out of bed when you have nothing to look forward to but more pain.

I guess it is just the fact that I have been sick for so long...I just get up out of habit now, and because in the back of my mind I know things are just going to be better if I get moving than if I stay in the sack and let everything slide downhill.

Friends who understand and accept us for what we are...haven't found any yet, aside from other sick people. I can live with that.

I have found it is better to be alone than to let people abuse you...those are not friends at all, no matter how chummy they may pretend to be.

Hi, I know exactly what you mean. I usually force myself up and get in the shower. After that I feel a little better. I am just so tired of not having a life I just feel like I have to fight back just to have even a little bit of normalcy. It is a good day if I am dressed by 3pm and are able to help with dinner. Hope you feel better soon.