Chronic Fatigue Syndrome Support Group

The stages fluctuate ... this is not necessarily a progressive disease. It's cyclical. Just because you can't get out of bed today doesn't mean you won't in a week or so.

Don't freak out ... it's sooo easy to panic and assume the worse but that isn't realistic and doesn't help your frame of reference. I try and think one day at a time (not that it always work, but that's my goal!)

I agree that we are comstantly fluctuating and to live one day at a time. I don't think your level of sensitivity to your environment determines the severity of CFS. For example I know people with no health issues at all that are sensitive to the TV and radio and then people with severe CFS that are able to relax listening to music etc. You could have sensitivity to the electricity which is a whole different illness within itself but could come along with CFS. Here is an ability scale so you can try to figure out where you are on the CFS charts http://www.ahummingbirdsguide.com/...

I agree. I get bad for a while and then get a little better at first I could still do stuff but now I'm bedridden although not too concerned bc what can you do anyway? My mom has had cfs for over 18 years and she also would go up and down. Try not to stress bc it will make your symptoms stronger.try to pray or listen to music or read if you can.

I know what you are referring to, but how we can find that old post, IDK. It was a very accurate picture of CFS, IMO.

I know speaking only for myself, that how I'm gonna feel from one day to the next is anybody's guess!

In the beginning, I was in bed for weeks at a time. Not anymore. My crashes seemed much worse to me because I was always afraid that "this time I might not come out of it"....I always do!

Two years ago, I could barely walk. Today, I walk quite well. Two years ago my stomach and intestinal tract worked just fine...today...it's all messed up!

I think that CFS varies with each passing day, and with each individual person. The important thing to remember is, after the crash, you will always get back up!

Also.. something else I have learned that I like to share....is that not EVERYTHING that we experience in our bodies is a CFIDS issue. New symptoms or feelings need to be evaluated and treated. We musn't just assume that "it's another CFIDS" thing. Our bodies change and age just like normals and we need to see our regular doctors for regular checkups annually.

All in all, I think that stress is a big contributer to CFS crashes and learning not to fear the crash, but to just rest through it is key.

Praying that your fear will subside, so you can be you and not be afraid to move on with your life as it is now. We just have to learn to do the old things in new ways, that's all!!

God bless!