What is Chronic Fatigue Syndrome

Chronic fatigue syndrome (CFS), also known as myalgic encephalomyelitis (ME), post-viral fatigue syndrome (PVFS) and various other names, is a syndrome (or group of syndromes) of u...

Join Now

Free, anonymous support from people just like you.

We're on Facebook!
Check out our page!
DS Store is Open
DS t-shirts and more
Advertisement
Advice:
activities to do that won't bother CFS?
Watch this 
View More Posts Ignore
Well I try to sleep at night and force myself awake in the day time so I don't mess up my circadian rhythms. The problem is finding things to occupy my time until bed (which I can't wait for) that won't severely impact my CFS symptoms. The computer, t..v. and music are all severely impacting to my CFS also with reading if I read to myself I have to reread things over and over and still can't understand it and feel sick so if I read I have to read out loud a few pages or a short chapter a day. I can only do this when I'm home alone which I'm not on the weekend. So if anyone could suggest any activities (like the ones you do that won't severely affect CFS it would be much appreciated)
Posted on 07/03/09, 01:07 pm
6 Replies Add Your Advice
Reminder: This is a support group for Chronic Fatigue Syndrome. We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

You may also create your own Member Groups where you can moderate the discussion.
Advice:
Email me when others reply to this topic help
View More Posts Ignore
Reply #1 - 07/03/09  2:01pm
" Does gentle classical music bother you? I find I can listen to that. I also look at gardening books because I think they're pretty and it takes no cognitive skills. Am also a huge fan of baths. "
View More Posts Ignore
Reply #2 - 07/03/09  7:09pm
" Hmm maybe crocheting or knitting if you do either of those. Both can be done slowly and you can rest in between and do simple patterns.

Have you tried audio books? Might be a compromise if you find people reading whose voices don't bother your CFS. I know most libraries have them now and some classics are free here at http://www.gutenberg.org/wiki/Main... . Also if you can afford it Audible.com is pretty nice. "
View More Posts Ignore
Reply #3 - 07/03/09  7:40pm
" Yes, audiobooks! I love them, I'm just starting to read books again after a long time of not being able to, but I still love to listen to audiobooks in bed, it can be a bit of trial and error finding books with readers you can tolerate. Um, are there any crafty type things you like? I wouldn't recommend painting by numbers, I thought that'd be nice, and 5 minutes knocked me out for 2 days...! Really quite cognitive...
Any type of card making, scrapbooking, drawing- even just doing some mindless scribbles and seeing what you can "find" within them is good for when you're just not up to it. I used to like holiday daydreaming, or nice activities I'd like to be doing. What about something like bead bracelets? Ones with larger beads, so they're easier to thread etc.
Also like going through photo albums, can do it lying down, and it's nice to go through pictures that remind you of good times... Think that's all I can think of right now, I'm lucky that at the moment I can watch tv relatively easily if i rest properly... x "
View More Posts Ignore
Reply #4 - 07/03/09  9:51pm
" Sometimes I take a bath and relax before bed. I look at magazines and dont read them just browse through them. At times I turn CNN on at a low level and close my eyes and just listen to the news. I drink some hot tea, and take melatonin and turn on light, soothing music. "
View More Posts Ignore
Reply #5 - 07/04/09  12:35am
" I can usually watch things on TV, but I usually have to choose shows over movies, and when I'm doing badly, I choose shorter shows over longer ones. I know that this doesn't help if you're not able to watch anything at all, but the idea of taking an activity you enjoy and finding a "mini-version" maybe might help.

Also, just a thought, sometimes watching things on my computer helps because of the smaller screen. "
View More Posts Ignore
Reply #6 - 07/04/09  3:23pm
" I take a bath and listen to relaxing CDs (I use Yoga Nidra relaxation and visualisation techniques as they help me switch off). Both of these are helping my sleep. Sometimes I just lie in my bedroom with a candle on and let my thoughtsdrift around. This seems to help unwind too. "

Add Your Advice
Advertisement

Advertisement
Content on DailyStrength.org is for informational purposes only. We do not provide any medical advice, diagnosis or treatment. More info
Portions of support group and treatment information provided by Wikipedia under the GNU FDL license
Copyright 2006-2009, DailyStrength, Inc. All rights reserved.
Terms of Service | Privacy Policy | Report Abuse | HSW International | HSW China | HSW Brazil