Chronic Fatigue Syndrome Support Group

Yes, the book helped me immensely because 1-it made me feel less alone and weird and 2- it has so many interventions we can try
3- it helped me understand what was happening to my body .

I'm glad to hear you're feeling helped by the book, SDS. I would recommend care with Teitelbaum's book based on my experience (I found it impossible to read with brain fog - there seemed to be thousands of contradictory options, and he recommended some things like colloidal silver that can have serious irreversable side effects). See this review by Jodi Basset who runs "A Hummingbird's Guide":

http://www.ahummingbirdsguide.com/...#63041595

I have also read "From Fatigued to Fantastic" twice in the last two months. I have started on the program also and feel lucky that we have a Chronic Fatigue Center here in Portland OR, that fallows Teitelbaums program. I think his book was very informative and up to date. It gave me a lot of hope. I've been doing a lot of reading about the leading edge of research and it seem consistent with what he writes. Yes, brain fog is a problem, I have to read things over more than once. Maemee

This book was given to me by a friend ( what a lovely friend to do that) and I have found it to be very helpful. I follow some of his recommendations that made sense to me, and I think these amount to part of the overall protocol that has kept me at least partially functional. I take D-Ribose every morning.

I have this book and Teitelbaum's Pain-Free 1-2-3 book also. I have mixed feelings. It is helpful to feel I'm not alone and be able to relate with a lot of the symptoms, etc. that Teitelbaum talks about. It also feels at least somewhat reassuring that someone is researching this area and finding ways to help.

I've been to a Fibro & Fatigue Center that uses Teitelbaum's protocol and spent significant money trying to give it a fair chance and try everything recommended. At first I thought it was helping a little. Now I'm questioning that. I'm finishing up the supplements I have and will be reconsidering buying more. I am trying the anti-yeast/no sugar protocol also. I'm thinking maybe the D-Ribose and some of the hormonal supplements have helped a little, but I'm mostly feeling like I just threw a whole lot of money and effort at my problem without significant results. That' my experience to date.

I am not a fan.

I have been to the Fibro and Fatigue Center in Philly, but felt that they were trying to sell me too many of their (very expensive) supplements.

I have only read parts of the book, but I do see a doctor that Teitlebaum mentions in his book. I am being treated by Dr. Martin Lerner in Michigan. He is an infectious disease specialist who treats certain chronic, active viruses with anti-viral medications. Through blood tests he found that I have active CMV, Epstein Barr and HHV6, and he is treating me with two anti-virals (Valcyte and Valtrex). I will be on the treatment for about a year.

Teitlebaum discusses these anti-viral treatments in his book.

Maureen, I have question about "active" viruses. What doest that mean exactly? I have had Mono twice (Epstein Barr) and after the second time was left with this awful fatigue. I was told both times that I am a "carrier" of this.

You said that through blood tests they found that you have active CMV, Epstein Barr and HHV6, you are being treated with two anti-virals (Valcyte and Valtrex).

What blood tests did they run? I need to tell my doctor this information.

Thanks so much for the info! I'll have to give it a read :D

I have read Dr Teitlebaum's book, "From Fatigued To Fantastic." I think it is excellent. He had Chronic Fatigue. Candida was a major contributor to my CFIDS and Teitlebaum has the questionnaire for candida in his book, but you can also find it on the web. He thought that the questionnaire was as good as blood tests as a measure for candida. There are no good blood tests for candida and ordinary blood tests do not determine if you have candida. I think that an alkaline diet is very helpful in recovery from CFIDS and Fibromyalgia. As a nutritional conusltant, I have not worked with anyone who has CFIDS and Fibromyalgia who does not have candida. A yeast-free diet and an alkaline diet are not easy diets, but I recovered. That was 12 years ago. It was worth it. It takes committment and all those with CFIDS and Fibro. either improve drastically or recover.
I agree that collodial silver is not a good supplement. It can stay in your liver for years and I have seen people who have had their skin turn gray permantly. I am writing this from my experience and research and not as medical advice.
Meditation and deep breathing are also great healing tools in recovery.
I want to also mention that I think that some Bipolar patients have candida. The last five people I have met who are bipolar also have candida and are lacking Omega 3 fatty acids (fish oil).
Kindest regards,
Patty Butts
Kindest regards,