I cannot believe I found this group!! Just wanted to share my story with this: I know this is typically stones in the gallbladder and the gallbladder is tyupicaly removed. I have not had this done, but I hear it is not that bad. What happened to me was this: when I was 19 they found a liver disease that I had been born with: they had to remove a football size cyst from my liver, as well as build me two bile ducts. I was only the second
surgery they had done in Springfield and the first one was found in the middle of another
surgery!!! Glad I was young and stupid. In fall fairness they discussed sending me to Cleveland or Chicago--the bile duct part of the
surgery was very unusual. In the process of this
surgery, the removed my gallbladder b/c it was in the way. In 2005, I began having horrible pain in my upper right side, well there were stones in my liver--in the bile duct tree, the main bild ducts and throughout the entire liver--since I had no gallbladder the stones had now where to go. Since 2005 to present, I have had multiple drains placed in my liver and different T-Tubes: along with the scary prospect of a
liver transplant. (decided it was not needed at this time) I rely on our Chronic Pain Support group a whole lot here as I continue to have horrible pain in my right side that just will not quit!! even though there is not pysical reason for the pain. Just wondering if anyone has had this? or if you know of anyone who had this happen to them and if they were ever able to find a resolution to stop the pain? Sorry for the life story--thanks!!
Posted on 09/30/09, 12:09 am
Yuck this has to hurt 
