What is Charcot-Marie-Tooth Disease

Charcot-Marie-Tooth disease, also known as Hereditary Motor and Sensory Neuropathy (HMSN) or Peroneal Muscular Atrophy, is a heterogeneous inherited disorder of nerves (neuropathy)...

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Discussion:
Anyone in their 20s with CMT???
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I joined this site to see if there are any young adults with CMT that I could talk to who understands what I go through. Or I guess anyone with CMT, if anything. I want to understand their perception, and how progressed your CMT has gotten. It's a pretty rare disoder and I am having a hard time finding other people like me. Thanks
Lindsey
Posted on 10/03/07, 08:10 pm
23 Replies | Most Recent Add Your Reply
Reminder: This is a support group for Charcot-Marie-Tooth Disease. We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

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Comment:
Email me when others reply to this topic help
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Reply #21 - 07/08/09  4:14am
" from the way it sounds I am close to the oldest and I too have lived with the desease my whole life and I am still going and have not planed to stop in the near future. just do the best you can and know your limitations and I am sure that each one on this site will do fine.. I too would welcome some questions and answers about this so feel free to reply "
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Reply #22 - 10/08/09  9:05pm
" I'm 19 with CMT i've had it since i was four. I go to college at Ohio university and it's possibly one of the hardest places to get around with all the hills and steps. I always stress about it and would love to talk to someone!! "
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Reply #23 - 11/01/09  4:46pm
" Hi. My name is Chris. I'm 21 and I just found out I have CMT. I'm waiting for the blood tests to come back, but the doctor says he is sure it is CMT after the EMG and physical test - whether the blood test comes back positive or not.

I would like to hear from anyone. How long have you had it? What has it done to you? I'm kind of nervous. "

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