What is Charcot-Marie-Tooth Disease
Charcot-Marie-Tooth disease, also known as Hereditary Motor and Sensory Neuropathy (HMSN) or Peroneal Muscular Atrophy, is a heterogeneous inherited disorder of nerves (neuropathy)...
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I have never met or spoken to anyone with CMT. I have lived for over 3 decades either undiagnosed or feeling like an alien from another planet. I am anxious to know someone that has CMT, has a positive outlook and can share with me feelings, experiences and hope. Thanks in advance for being my e-pal.
Posted on 08/23/09, 10:08 pm |
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i am exactly like you..i have lived with this since 1978 and never have met one person with it...my email is francesca565@aol.com...please email me. 
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I was diagnosed with cmt at the age of 43 and had have some dificulties like running and other things like keeping my balance from time to time . But I did manage to join and retire from the USAF at the age of 40 and build a seccessfull home remodeling bussiness and didn't even know what CMT was I just kept trying and wouldn't take defeat for a answer I am not saying everyone can do this but maybe it can at the least let you know that you are not defeated until you give up. Dont surrender to it and press on and enjoy life as much as you can.
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