Charcot-Marie-Tooth Disease Support Group

If you live with CMT, you know the trials we have to deal with on a daily basis. But you also know that we are strong, and that we will endure and triumph; that there’s hope for finding a cure.

My father and I both have CMT. As the years have gone by I have seen the CMT progress in my father. While he has never complained, he has noted changes. Walking distances got harder for him and he was having more trouble with numbness and balance, etc.

After reading an article in the CMT newsletter, my dad did some research. The article discussed newly developed braces made specifically for people with CMT. My dad wanted to try them. So my dad and I headed out to Las Vegas to meet the maker of the braces, and enjoyed a road trip bonding experience on the way!

After the week -long process (in which the braces were hand made and tailored for my father), I witnessed a miracle. For the first time in his life, my dad was walking without pain and at a normal speed. I have to admit I was overcome with tears of joy. It was only a matter of time before my dad adapted perfectly to the braces and they changed his life! These braces are absolutely amazing. My dad now walks around faster than I ever remember seeing him walk; his balance is astoundingly better, most of his numbness has subsided, and I can even see how the physical changes have affected his spirit. I really can’t put into words how much better he is doing.

These braces are specially tailored for every individual of every age.

My dad and I want to spread the word about these braces. Knowing how much these braces have changed his life, he is now acting as representative for the manufacturer in hopes others will experience the same success.

I’d love to share our story with you, and find out about yours. Please feel free to contact me anytime at vikki.vance@gmail.com
Posted on 07/15/09, 08:07 pm