Charcot-Marie-Tooth Disease Support Group

dullshit! im 41 an take care of myself. U can d00 it.

Chip Nikki and I have advanced forms of CMT, maybe at 41 you can take care of yourself but at 16/17 we're having trouble physically. Don't assume we can do things like you.

Nikki, I know what you're saying.

sorry about your father and you no to the guys response below everyone who has cmt is not the same some are worse then others you no my feet looked normal and i felt normal for many years up until a few years ago that is i noticed changes in my feet and in my body as far as the pain some days i can't even walk or move without medicine and sometimes that does not help I have a hard time sharing this with people I have told no one just my family know's my immediate family the extended family doesn't even no I understand how you feel though with how you feel and how people look at you I have had some take a look at my feet and I can only imagine what there thinking I even had a sick ass X boyfriend who not knowing I had a disease would talk about my feet and laugh and everything big reason he's an x but anyway you know sometimes I make myself feel better by saying atleast i can walk and and atleast i got to feet cause there are alot that don't. recently I have been gettin around in a wheelchair though cause my ankle completly snapped and is run over i now have to have surgery and hopin it goes well and i'm not forever in a wheelchair. so is your case advanced are you already wheel chair bound or you think that's your inevitable fate? all i can say is keep your head up and if you ever need to talk to someone i'm here i don't have really any friends and none i can talk to bout this so.... holla at ya

And yes I am 50 and I take care of myself too and had worked hard up until the Dr. Told me I needed to stop and even after that I still work from time to time because it is hard to find someone that can do most of the things I do in Remodeling a house it is too the point I can't stand to watch them because I know I am capable of doing it better plus I enjoy working..Plus did you notice my age? you just got to get up and get going with your life.. I've seen the world and still going just slowed up a bit.. Winners are the ones that try no matter what the situation.. and I am sure you won't to be a winner

im just mad at people, your still going strong,thats cool. that helps my knowing this. ive let mysef get down, as Kyna told me its hard to look an be strong all the time. ill get back up. sorry for being an ass.