What is Charcot-Marie-Tooth Disease
Charcot-Marie-Tooth disease, also known as Hereditary Motor and Sensory Neuropathy (HMSN) or Peroneal Muscular Atrophy, is a heterogeneous inherited disorder of nerves (neuropathy)...
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Hi everyone...I'm new to the group and wanted to introduce myself. I'm Julie. I'm 34 and was diagnosed with CMT at age 5. I walked all the way upto I was 23 and now am in a wheel-chair.
Posted on 01/18/08, 08:01 pm |
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Welcome. 
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hey julie, im aaron. i just joned today. i am 29 and i was diagnosed back in '04. how is today???
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Hi Julie, I was diagnosed at age 15, small town docs didn't know what it was, and just got AFO's for the first time.
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Welcome
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Hi. Welcome. I was diagnosed at the age of 2.
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hi..i was diagnosed at 22..am 54 now...this is the first year that it has actually altered my life i have some odd strain of CMT evidently.
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hi i am also new to ths site, im 27, my ex hubby has cmt and now my 5yr old son has started showing early signs, i saw 2 specialists today, it was very interesting, and i was hoping i could get some real help, these specialists had opposing views, one agreed with me that finding out if harry has th gene is the best plan of action where the other said that it could ruin his life to find out this early, as i have read you were all diagnosed at diff ages so what do you think we should do, find ou tnow and make plans for the future or wait till he is old enough to decide if he wants the tests? please help me as i want to do the best for my little boy
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