What is Charcot-Marie-Tooth Disease
Charcot-Marie-Tooth disease, also known as Hereditary Motor and Sensory Neuropathy (HMSN) or Peroneal Muscular Atrophy, is a heterogeneous inherited disorder of nerves (neuropathy)...
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My son has CMT...
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I was just wondering if anyone can give me any sound words... My son was diagnosed by the age of 1. It goes back a few generations but I don't have much "personal" advice as I don't really speak with the biological father. I've heard all the stuff and read all the stuff. My son has a great Dr.who is actually the leading Dr. in this field in Western Canada. My son wears orthotics. He falls. ALOT. He obvously can't "run". He is worse than the previous generations which I was told is usually not the "norm". Whatever that is. He has gone for the genetic testing and Iknow what type he has(just at this late rhour can't remeber if it 1b or 2b...doh!!) Any stories, questions whatever.... please. My son is definetly slowly but surely getting worse. SOmetimes I am so proud of him it hurts. Thank u.
Posted on 07/27/07, 02:07 am |
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I too did the same several years back in Korea I sprang one anckle going up the mountain and the other comming back down. the same day. as far as advice I am too old to for any treatments to work on me they say but your son is not I say read every note through out this site and if you like what you have read then talk to the Dr. and see what their oppenion is and go from there. I hope all works out for your son and you take care. 
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My Son too sprained one ankle then sprained the other he was never the same it just happened out of the blue. Perfectly healthly teenager never lothis balance never had falls was very active. Then this 6 months later he was in a wheel chair cannot walk normal at all. This all happened over a very short period of time They now wantto do a Biopsy to give us a100% answer if this is what this is
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