What is Charcot-Marie-Tooth-Disease

Charcot-Marie-Tooth disease, also known as Hereditary Motor and Sensory Neuropathy (HMSN) or Peroneal Muscular Atrophy, is a heterogeneous inherited disorder of nerves (neuropathy)...

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Tuesday November 24, 2009

Members in Need

Show stories in Members in Need
  • a letter from my brother

    Thursday, April 23, 2009

    If I can persuade just one person to quit smoking (hopefully more) after reading this, I will be fulfilled...
    Greetings, from the top of the mountain.
    First off, congrats. on the smoking project. For you little sister, the worst is behind you, the jogging proves that. Just remember, the "ghost of the smoking monster" is always running behind you, keep your distance, and never let him c...

    2 Recommendations

    9 Comments

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  • getting out

    Saturday, December 6, 2008 | A Frustrating story

    IM isolated,worse than ever.

    2 Recommendations

    4 Comments

  • Journal Entry for November 8, 2008

    Saturday, November 8, 2008 | A Venting story

    I have Bi-Polar depression and my doctor just quit me 11-08 so Im not on any anti-depressants now , have to find another doctor and start all over again. It's the first time in about 10 yrs so I fear how far down I will get and if I'll be able to get up again.

    1 Recommendation

    5 Comments

  • Journal Entry for July 20, 2009

    Monday, July 20, 2009 | A Venting story

     I guess I was expecting more out of this group than the group is willing to give.  I also was brought up that you only get out of something what you are willing to give I don't know if I tried too hard or you people have just gave up and wanting the rest of the world to feel sorry for you.  Well they don't and they (we all) have bigger problems in the world so you have to ...

    1 Recommendation

    3 Comments

  • Well...

    Saturday, February 21, 2009 | A Venting story

    I could've been better. I guess it's not so much that I am not a happy person - I actually am! It's more about people sometimes dogging me at what I do. Today wasn't a good day on that and I am hurting on top of it!!
    So this person thinks she's being honest with me and telling me she doesn't like my hair and I have changed since doing this band thing - which is NOT true - ...

    1 Recommendation

    2 Comments

  • Wednesday, February 27, 2008

    Wednesday, February 27, 2008 | A Frustrating story

    I cant do anything right.  And No one is ever happy for me.  I found out i was pregnant and told my husband.  So then he acts like the world iis ending and is all pissed.  And if that wasnt bad enough.  When i told my parents they were all negative too.  I cant take this.  Am I never alowed to be happy about it.  I thought it was suppose to be a blessing.&n...

    1 Recommendation

    2 Comments

  • Looking for help, support and advice

    Sunday, August 23, 2009 | A Call For Help story

    I have never met or spoken to anyone with CMT.  I have lived for over 3 decades either undiagnosed or feeling like an alien from another planet.  I am anxious to know someone that has CMT, has a positive outlook and can share with me feelings, experiences and hope.  Thanks in advance for being my e-pal.

    1 Recommendation

    1 Comment

  • run away

    Friday, March 13, 2009 | A Frustrating story

    i was having very interesting discussion with someone todya...and he got me to relise the truth and i didnt want to....my whole life i have been running from my problems....when i was oyunge ri ran away from the fact my mom sat there and let my step dad do what he did to me...i ran away from my problems when i got put into a foster care...i ran away from my problems when i was diagnoised wth musc...

    1 Recommendation

    1 Comment

  • What a morning.

    Monday, August 3, 2009 | A Painful story

    Asthma is acting up once again. I didn't sleep good last night, due to the pain factor. The pain in my arms is starting to get worse, which i knew it would eventually. It just seems like the natural progression of things. Everyday i am constantly worried that i will fall and break something. It's days like today that i remember i am on a such a strong medicine, which doesn't even real...

    1 Recommendation


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