Celiac Disease Support Group

yes, I was extrememly flexible as a child, and even as an adult - at 44, I'm not quite as flexible as I once was... but I'm probably more flexible than other women my age... my Mom thought I was double jointed when I was very young, but my pediatrician said that I just had lax ligaments and was flexible... and we left it at that. I was never into gymnastics or dance when I was young, my interest and talent lay in swimming - I was a competative swimmer for about 20 years. Almost all of my joints have popped and cracked, creaked and left the socket since I was 10 or so (that's when my memory starts anyway) and my elbows joined the symphony in 2004. chiropractics helped, working on my somewhat poor posture also helped, but i'm used to it - just can't tolerate even small bumps to the knees - lays me right out. I didn't get dx'd with Celiac until I was 24, but I had a host of digestive difficulties forever and ran to hide at the sight of the enema bottle, which my mom regularly tortured me with - until I was about 12, and she couldn't catch me anymore, or find me in the hidey places I could fold myself into... sheesh!

I was diagnosed by a rheumatologist 32 yrs ago with what he called Hypermobility arthritis-same general thing-"double-jointed' great deal of pain. It made pregnancies quite difficult-had many episodes of shoulders/hips/fingers dislocating. Any time I mentioned it to a doctor, I was told "never heard of it-no such thing". I also had the snap crackle pop joints-I developed fibromyalgia about 7yrs ago-no connection, I was told. Last year, I also did online research to learn of Hypermobility Syndrome-Ehlers-Dano, but have not been able to confirm it. And yes, in June I was diagnosed with Celiac as well-

hypermobile joints/ehlers danlos synd, celiac, fibromialgia, and rhumatoid are all on the same chromosome (chromo 6). I just had surgery on wed and everything that could have gone wrong did. I asked the gyn that was over my case if she though ehlers danlos was a possibility and she is running a kariotype on me as well as testing for antibodies for celiac. They have tested me for everything else in the world why not test me for something that makes since lol!

hope you feel better quickly. I happened to be watching Medical Mystery on Discovery today and there was a woman with so many symptoms including the onset during pregnancy-had symptoms for 15 yrs. multiple surgeries on her joints-it did turn out to be EDS and makes me want to find out all the more-good luck with your testing and please share, if you could-

that sounds interesting...wish i could have seen it. Mine seems to progress with each pregnancy too. I will post info as I get it. Im happy to help others. thanks so much for the support.

I spoke to my PCP 2 wks ago about the possibility of Ehler's-Danlos. She talked to a geneticist, sharing my history with fibro/celiac/grave's and he immediately suggested EDS. She told me today that he is excited to meet with me and do blood tests-it would give me an answer to so many of my medical problems over the years-waiting for appt.