What is Celiac Disease
Celiac disease is an auto-immune disorder of the digestive system that occurs in genetically-predisposed individuals. It is characterised by damage or flattening to all or part of ...
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Symptoms & how to solve them.
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Hi Everyone,
I would greatly appreciate the experienced Celiacs to share their symptoms. I keep getting so sick while following the NO gluten and NO oats diet. I do not seem to have Casein. WHEW! I seem to be Lactose intolorant. LI is easier to live with. Thank the Lord! So I've followed what I know to do and I am still very sick. First, YES the diareah has finally STOPPED. I am still experiencing intestinal cramps and swelling, swollen stomach and that's not the same as the instestinal swelling, anal swelling, feel like vomiting but don't, headaches that require RX pain drugs, ALLERGIC reactions to many foods....including the ones that say GLUTEN FREE right on the lables and lastly, itchy skin. I bought a GF bread and I love the taste and texture. It causes me a bigger allergic reaction each time I eat it. I ate the bread repeatedly because I didn't realize it was a true allergy. I thought, OKAY I'm itchy a lot so that doesn't mean it's something I cannot eat. I am needing to take benedryl and pain drugs just to eat. Would someone PLEASE help me figure out how to help myself. I keep trying and I'm better and still I need your help. Is it expensive for everyone else to eat GF? I am lacking in confidence. I don't understand the reason my confidence has lowered. Do other Celiacs experience this at first? Posted on 11/29/08, 07:11 pm |
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I still have stomach problems all the ones you mentioned and sometimes awful diareah and of course that brings me down because I feel like crap I also think I loose confidence when I feel sick and look bloated and can't get comfort cause I know I can barely eat anything good not to mention people who are too interested or laugh at my gluten free everything I fuckin hate food now 
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The international standard allows wheat starch which contains gluten. They claim that the amount is so small that we should be able to eat it without problems.
In fact, in most of these countries, the government pays for GF food for Celiac's because it is a prescription diet. A total GF diet is rather expensive for the government so they came up with this ridiculous standard. Wheat starch contains gluten. All gluten damages a Celiac's intestines. Those who can afford to purchase their food from the US where the standard is 0% gluten. But those internation product makers are still allowed to market and sell their low gluten products as GF in the US and label them Gluten Free. This may be what is causing you to be sick.
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Have you had your pharmacist check all of your meds for gluten? Hubby did, and found that at least one had gluten in it, and they had to change his prescription for that. He also had multiple food allergies, and had special testing done. He is allergic to Aspertaim, MSG, Polysorbit 80 (had never heard of that) and Red 40. Artificial colors are a problem for a lot of people.
I suggest that you go to your library and get see if they have any cookbooks by Bette Hagman, and others about cooking gluten free. There are some excellent books at Alibris on the Intenet. I just ordered a book dealing with hypoglycemia, which hubby also has. The low blood sugar/gluten free diet isn't easy to handle, but we're learning. It helps to cook everything from scratch - that way you KNOW what is in it!! I wish you the best!!
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I still have many of the symptoms as well and it is VERY frustrating. What I think helped is to eat foods which are naturally gluten free instead of a gluten substitute like GF flour. Also maybe try small portions several times a day instead of big meals, it might help some of the bloating. Good luck to you and good luck to us all!
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I know my suplements are gluten free, diary free and a lot of Free stuff.
I didn't thnk of my meds. So I'll have to ask. I didn't know foods from other countries can have gluten in them. That really makes me frutstrated. SO do we have to make sure all of our foods are fresh and if we canned something it must be ammerican?
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I feel your pain. I was diagnosed in Dec of 06. The itching nearly drove me mad on many occasions. I kept track of what I was eating and then started eliminating things to see if it helped. Gradually I weeded out most of the things that make me itch. The biggest one for me was potato chips, LOL. I was addicted. The potato itself isn't the problem. One of my worst itching triggers is sunflower oil. Most potato chips in the U.S. are made with sunflower oil; I'd say 99%. Oh well. It was a fair trade. But I can also react to most anything in the daisy family from cucumbers to lettuce. Yeah, allergic to lettuce.
So you have to start keeping track and then go through and systematically eliminate things to see how you react, or don't react. Some of the things that initially bothered me with gas and bloating I can now three years later handle in limited amounts. But the stuff that makes me itch then still makes me itch. It's a constant experiment around here in what works today. I try to think of it as an adventure. Not sure I always succeed, but I try.
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celiac disease is a cell mediated immune response.
after exposure, specialized immune cells are generated. this takes time, just as it takes several days of "incubation" between exposure to a cold and coming down with it yourself. you need to learn how long your body takes to do react. if I get glutened at 6pm on Friday, the cramps set in at 3am on Monday. because of this delay, it is necessary to keep a food diary, and to wait several days before repeating an exposure. the most efficient way I know is 4 day Rotation Diet, a form of elimination diet (not the weight loss diet) some "non-gluten" problems may also be delayed, while others will be show more quickly. there is some information on this approach here: Rotation Diet http://www.parentsofallergicchildr... you can also search DailyStrenght for discussions, many are in the Food Allergy group
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You pretty much discribed what I have been going through, the last few years. I now have refractory celiac disease, with that it doesn't matter that I am on a gluten free diet, I still have flare ups alot more then not. Stress is a major factor when I have problems:good / bad stress on your body is hard on your system.
Have your doctor check you out for refractory celiac.
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this helps me because i am really struggling- i have been cooking as gluten free as possible for the last few days and trying diary substitutes-everything i had to eat today was bland so i thought i was starting off fresh and i now i feel like i am back to the beginning with cramps and bloated. i am irritated. sometimes i dont know what sets me back. i think i need to keep a food diary especially if it takes a few days for reactions to kick in.
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Yep, this entire deal with CD is a struggle.
I have other food allergies too. Give me a cucumber and I'll go into an antiphilalctic reaction (deadly). I have other immune issues too. It's common. Hang in there. You'll get the support you need here. It just takes time and sometimes a long time. It's a work in progress to get pretty stable.
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