What is Caregivers

A voluntary caregiver is the modern terminology for an unpaid spouse, relative, friend or neighbor of a disabled person or child who assists with activities of daily living and ass...

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Discussion:
finding joy and accepting brain injured spouse
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Two plus years and husband still profoundly impaired. I've stopped waiting for him to come back. Too early to give up? How do I have a life beyond his care? How do I leave him out and not feel guilty? How do I cope with a broken heart and a broken life?
Posted on 11/22/09, 11:37 am
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Reply #1 - 11/24/09  1:49pm
" I wish I could take your pain away, it has to be so hard. I'm sending hugs your way, hoping today is a better day for you. "
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Reply #2 - 11/24/09  5:24pm
" I lost my husband to the abyss of Alzheimer's a few years ago, but he is still sitting on the couch.

It is like our lives are in limbo, or on hold. I don't have an answer to your question - Maybe there is no answer. "
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Reply #3 - 11/24/09  7:28pm
" Thank you friends. It helps to know I'm not alone. "
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Reply #4 - 11/28/09  12:13am
" It wil be two years on Dec. 1st for my husbands brain injury. I dont want to do this the rest of my life, but when I look at him I know I'm all he has. There was an article online about a boy 20 something in a coma for 20 years. He "woke" and now at 40 something knew everything that was going on almost the whole time. I have to believe my husband knows how much I do for him, love him and how tired it can be. Mentally, more than physically. I never go out except for part time work only so I dont loose my home. I know its not healthy but mostly because its so hard to be around others that talk about their lives, husbands etc or they complain about the most trivial things (I miss those days) Things that used to seem so important are so not. Its like I'm married but not, in love but not loved, lonely, lonely, lonely.....I'll pray for you. "
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Reply #5 - 11/29/09  12:18am
" My husband isn't is as bad as your family members. But I must admitt I look at him and wonder where he really is. He has good days when he is about half himself. There r times when I don't know where he is. He forgets so much, blames me 4 so much(most of which I didn't do) but I usually take the blame 4. But he just complains all of the time. I know he doesn't feel good but he complains about such little things. He is so draining. That is about 6 days out of a week. Then there is the 1 day when he is back 2 his normal self. We can go out 2 eat, watch a movie or do something like that. It is so hard 2 c someone who was a hard worker protector of r famliy 2 b like this. I am sorry 4 your pain. If u need 2 vent I am usually on here a few times a week. "

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